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Q: 

how do I know when pityriasis rosea is healing?

By Anonymous May 21, 2010 - 6:21am
 
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I was diagnosed with pityriasis rosea almost 6 weeks ago. Apparently it takes 6-8 weeks to disappear, but I keep finding new spots every time I shower, new red spots seem to pop up. The first ones I got seem to keep changing. Does anyone know what these spots are meant to look like before they just disappear?

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(reply to greenbean12)

It's been pretty much a constant now for a very long time. The areas along the trunk and flanks of my body shift and lessen in their appearance over time, but never completely gone. It was within the last few months that they started to slowly migrate down my arms and legs.

As far as possible triggers, I'm at a real loss. I tried cutting certain foods from my diet, sticking with a strong multivitamin regimen, moisturizers and creams (Which do help with the flaky white skin and lessen the redness, but don't ever fully remove them) and a number of other things.

I couldn't tell you if it itches at all, because having lived with this for over 10 years off and on I have come to deal with it. Possibly a mild constant itching that I have just grown accustomed to. It's sad to think all the things I have missed out on because of this condition. There are days where I quite literally want to just jump out of my own skin.

Today I actually plan on getting back into tanning beds to see if I can beat this thing.

I don't know that I have ever used tanning beds long enough to remove ALL the patches, because I am wondering if, like a virus, if you don't eradicate it completely it will just come back (which HAS been the case in the past.)

But if it takes going in for a tanning 1-2 times a week to keep this thing at bay, I'm all for it.

Thanks for your interest in my personal situation.
Best of luck to yourself and others out there suffering from this.

February 8, 2015 - 11:12am
EmpowHER Guest
Anonymous

Cleared my pityriasis up in 2 weeks! 25 yr old female. Used clinical strength head and shoulders in place of shampoo and bodywork. Gently cleansed with hands, no loofah. Applied Aveeno daily moisturizer 3 times a day and went to the tanning bed every 3 days.

January 4, 2015 - 4:06pm
(reply to Anonymous)

I am currently trying to isolate potential treatments for PR. Like you I have tried Head and Shoulders, creams/lotions, and sun bed tanning. I would be most interested to know which of those remedies is the cause for clearing up PR patches. In MY case, lotions/creams only VERY slightly reduce the redness and help with the flakiness. Sun bed tanning seems to be the most effective method for most people afflicted with PR. That being said, I have discontinued use of lotions/creams and am going to get back into the tanning beds to see if that is a viable method by itself to treat PR.

January 21, 2015 - 6:40am
EmpowHER Guest
Anonymous

I have PR right now on the back of my shoulders and down my side. The strange thing is my rashes don't stay on my trunk they are on my sides (armpit to feet). I have had this for three weeks and found that epsom salt, aloe vera and calamine lotion are the best methods for treatment. If your skin starts to itch then do hydrocortisone cream. Don't use hot water or harsh soaps around or near the rash. Take lots of B & C vitamins.

December 30, 2014 - 9:11am

Goodness, I have a ton to say about PR. I'll try to briefly go over my case and the healing process.

I had an active PR rash for two weeks (by "active" I mean that it was spreading and developing. It wasn't "maturing" - I'll explain this below). After that, it was about two weeks of healing. My rash was very severe - my entire torso, neck, legs, and arms were covered. I even got a couple on my feet. My mother patch was on the back of my neck.

THE HEALING PROCESS: The PR mother patch formed first. The skin felt a little itchy, and then three days later, I had the full-blown, bright red patch. The other spots first appeared almost like little pimples. They spread like crazy. First a couple, then ten, then a hundred. As the spots "mature" (which is a good thing!), they will be less red, flatten, and expand. Basically, the spots get flat and appear to grow larger in size. When the spots do this, they are drying out. They will also slow down or stop spreading. The next step is the peeling. When your spots start peeling, you're almost there! It can be HORRIBLE. I itched so badly I could hardly sleep during this time. My case was quite severe, so the peeling was pretty bad. It was basically like being covered in hundreds of miniature, severe sunburns. Some spots peeled off maybe one or two layers of skin. The more severe spots (like the mother patch) peeled over and over again. Strangely enough, the spots peeled off in the order they came, so for me, the mother/herald patch went first, then the spots on my chest and back, then my stomach, etc. Once the peeling is done, the skin will fade back to normal (you might not experience this stage, but I certainly did). There was NO scarring.

DETAILS ABOUT MY CASE AND WHAT I DID: For your info, I have extremely fair skin that can scar easily. I was terrified I would be completely scarred from this. I read that tanning and extensive sunbathing were good for PR, but I knew this wasn't a healthy option for my skin. I implemented a little sun-time (about ten minutes a day) for about a week. I just exposed some of the affected areas to the sun. The sun where I live is very intense, so ten minutes was all I could do. Finally, I think my case got so bad so quickly (covered in spots within a week of the formation of the mother patch) because I, unknowingly, was doing everything wrong - like enjoying nice, hot showers (I'll explain this below).

MY TOP TIPS (what ended up working for me): have a little time in the sun but do not overdo it. Wear loose-fitting clothing. Try not to scratch (this was quite difficult for me). For ladies, go without a bra as much as possible. My chest was covered in PR spots, and this was a huge source of relief and also cuts down on sweat. Invest in a cotton bra if you don't already have one and wear this when you want to wear a bra. Take cold/cooler showers. I know that these are horrible, but the heat only makes PR worse. Speaking of heat - do NOT let yourself get hot. If you feel yourself getting even a little hot or sweaty, try to cool down immediately, if possible. Your skin might even start to feel like it's "prickling" if it gets hot. I used dandruff shampoo on my skin once daily and, later, every other day. This stuff might sting, so be aware of that. I took two quick showers - one in the morning, one in the evening (or after my time in the sun if I thought I might have gotten sweaty). I allowed my skin to air-dry afterward. One shower with the shampoo, the other with a Dead Sea Mud soap from One with Nature. I love this stuff and have continued to use it. It's mildly exfoliating (when you rub the bar against your skin), and that helped with the itch. After each shower, I covered myself in the Raw Shea Butter lotion with soy milk, frankincense, and myrrh from Nubian Heritage. This felt absolutely wonderful on my skin and stopped the itch (until my skin dried out again and needed more lotion). Before bed, I slathered myself with coconut oil. Overall, it's just important to keep your skin as moisturized and healthy as possible. I would recommend not shaving your legs or whatever else if the skin there is affected, or if you do, just try to be extra careful. Calamine lotion was somewhat helpful with the initial, mild itching, I didn't use it beyond the first week at most, I believe. Daily, I took a multi-vitamin as well as biotin. I drank at least two cups of dandelion tea daily - a liver cleanser. I took elderberry extract - an immune system builder. I also drank things like chia kombucha tea and other things that might help to cleanse your body. Remember, you need to treat your inside as well as your outside.

PR was horrible and pretty depressing. I ended up having it on my birthday - what luck! Just figuring out what to wear every day was quite a task because I felt so self-conscious. I wouldn't wish it on anyone, but I hope my tips will help anybody who has it. Just remember that it WILL go away, even if it does feel like it's going on forever. Reply to me here if you have any questions. :)

December 29, 2014 - 12:48am
EmpowHER Guest
Anonymous (reply to greenbean12)

Im now finishing my week 4 on PR. All symptoms as above,and I take shower and change water streaming for more pressure,so it massage my self not scratching. But the thing is dont know is it related to PR but I got INSOMNIA for 3rd day now. In 72 h I slept maybe 2-3 h max! But don't feel tired,woried a bit because it's not usual to me. Will be happy for ant reply.

January 23, 2015 - 8:21pm
(reply to Anonymous)

I'm not sure if I already replied to your comment or not. Anyway, I definitely had a hard time sleeping with PR, but that was because of the intense, horrible itching. Is there something like that that's keeping you from sleeping?

February 8, 2015 - 12:05am
EmpowHER Guest
Anonymous (reply to greenbean12)

Trying to wait out PR too. It has now been over two months. I haven't tried the dandruff shampoo as a body wash yet. Have been using calamine lotion and aveeno lotion. My PR spots are located on my legs above the knees. Any other ideas to make the spots go away. Do I need to go to a dermatologist? The spots don't itch but I am tired of them!

January 19, 2015 - 11:48am
(reply to Anonymous)

I don't think it would hurt for you to see a doctor. I didn't go because I had heard from others that the dermatologist just tells you to wait it out, but it might be helpful. Is your mother patch on your legs as well? And you only have spots on your legs? I think my biggest recommendations were probably all listed in my original comment, but here's a couple: a daily vitamin with lots of biotin, liver detox tea, some time in the sun (but not too much!!), sea salt soaps, don't let yourself get hot or sweaty, and coconut oil (drink it if you can stand the taste or put it on your skin). Are your spots looking dry at all? I hope something helps!

January 23, 2015 - 11:44pm
(reply to Anonymous)

Going to a dermatologist is ENTIRELY up to you. From MY personal experience, the general treatment therapy chosen by MOST, is to prescribe triamcinolone cream (Steroid creams). For ME, they tend to work fairly well, but with the price of a tube being what it is, and how extensive my rash covers my body, it just isn't a viable option for me. A single tube would last less than a week, and very shortly after the patches clear up, and I stop using it, they return lightning fast (within a week or two).

That being said, it MAY be a viable option for you, because as I'm sure you're aware, everyone's body is different.

If you are at all open to the idea of sun tanning in natural sunlight or using tanning beds, then that IS the most effective means of clearing up PR patches in most every case I have come across from other people suffering from PR. Naturally suntanning has it's risks, but in moderation and taking proper steps to not burn, I don't see how it is harmful (I am not a doctor, nor do I pretend to be one).

ALWAYS wear sunscreen when tanning, because getting a sunburn will do more harm than good when it comes to clearing up patches. In my previous uses of tanning beds, a moderate intensity bed, I would only need to stay in for around 7-8 minutes, and after as little as 3-4 visits I would see noticeable improvements. First being, a reduction of redness, second being a lessening of the raised surface of the patches, followed by a slight browning (sort of off color than the rest of my unaffected skin), then finally the patches would revert to my natural skin color. VERY ODD. They wouldn't tan like the rest of my unaffected skin, but rather revert to my natural skin color. Starting in a week or so I will be hopping back into a tanning regime, and conducting tests to see if continued use of tanning beds will turn those former PR patches from my natural skin color to tan like the rest of my skin. I also plan on covering up a patch or two so they are not exposed to the UV light as a test of sorts.

I have lived with this condition for over 10 years, and really want to get down to the solution so I can provide accurate feedback on my personal experiences.

I hope by the time you read this, if you read this, your PR has shown some measure of improvement!

January 21, 2015 - 6:54am
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