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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?
It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary
difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.
There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)
Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?
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No, nanashana, my comments are directed at your behavior on this thread, which is a matter of record and speaks for itself.
If I may, be careful what you presume. I encounter women who are taken in by Wiley's promises on a regular basis. It's no more or less novel for me than encountering those who are suffering and disillusioned.
January 1, 2010 - 3:41amThis Comment
nanashana, nobody is denying or discrediting your personal experience. It's acknowledged that women have reported positive experiences on the Wiley Protocol.
But you've just arrived and combed through this thread in the last few days and dropped nasty, contemptuous comments at nearly every opportunity towards the women whose experience differs from your own.
If there were no other possible explanations, I would have to conclude that the Wiley Protocol, when it works, makes women callous and spiteful towards those who don't share their success.
December 28, 2009 - 11:51pmThis Comment
There you go again, accusing me of doing the very thing YOU are doing "dropping nasty, contemptuous comments at nearly every opportunity towards the women whose experience differs from your own," and looking for whatever negativity you can possibly find in someone who has a good experience with the Wiley Protocol.
The fact is that you can't stand that there is actually someone who is as passionate for this protocol as you are against it and who doesn't have a financial motive.
December 29, 2009 - 8:12pmThis Comment
No, nanashana, my comments are directed at your behavior on this thread, which is a matter of record and speaks for itself.
If I may, be careful what you presume. I encounter women who are taken in by Wiley's promises on a regular basis. It's no more or less novel for me than encountering those who are suffering and disillusioned.
January 1, 2010 - 3:38amThis Comment
Deb and Amanda, I've read through your sites at wileywatch.org and rhythmicliving and understand now why you feel the way you do. You've been hurt by Suzie Wiley and your sense of what's right has been offended by her and her husband. I'm so sorry that you've gone through what you have.
I've watched the videos that you've pushed in your comments and truthfully, they've only served to give me the information that I've craved about this program and it's founder. But it hasn't dissuaded me from using the protocol. I have abhored ABC's 20/20 program since the 1980's so anything they try to discredit, I tend to favor. Since you use it as one of your banner messages, my response is to lean the opposite direction. And the hidden camera videos of Suzie Wiley's support group meetings didn't cause me any contempt toward her. In fact, I wish I could attend a support group meeting and talk with her!
Having said that, I can see why you feel the way you feel. I don't endorse T.S. Wiley, just the protocol. Because I believe in the rhythmic BHRT message, and don't see any better alternative.
December 29, 2009 - 10:14pmThis Comment
We have to recognize that women on the Wiley Protocol are subject to severe mood swings. You can't cycle hormones so recklessly and not get this.
On the Wiley Youtube video, the patients said they were slamming doors and crying. Wiley dismissed the emotional see-saw as "going through puberty" again. The Youtube also has patients who had to have surgeries on the regimen.
Those people seen on the Youtube have long since abandoned the Wiley Protocol and are happily taking static bioidenticals.
December 27, 2009 - 10:52amThis Comment
Nanashana, I never said anything challenging the authenticness of your experience or tried to invalidate it. But your Wiley report differs from everybody I've met on the protocol, spoke to on the phone, or corresponded with via email. When somebody persistently posts a glowing testimonial, most of the Wiley Protocol Casualties suspect it's Wiley's publicist. She has said on the web that the challenge of her work is to counter the number of the negative Wiley hits on Google by creating positive ones. I always suspect she is "salting" the web again.
When Wiley's publicist publicly concedes she has her work cut out for her because of negative reports about her client, you might suspect you're taking dangerous medication.
You might be the one person who does okay. Just like with the Ford Pinto recall, not everybody's gas tank exploded on impact. But many did. The car was defective. A lot of people died. But not everybody. Those who didn't die didn't go around claiming the Pinto was the best car ever, and they didn't make Pinto commercials. They were happy to get away with their lives.
December 27, 2009 - 8:59amThis Comment
NONE of what you say is substantial or relevant to MY experience. Besides the fact that you can't discount how well I'm doing personally on the protocol, you're trying to discredit a method of dosage and delivery. How ridiculous is that? The irony is that this protocol not only allows for individual adjustments of dosage but demands it. The amount of hormone dosage is adjusted for each patient. Previous to the protocol my doctor and I were doing a "hit and miss" with vaginally delivered estrogen and over the counter progesterone cream. Now, with this protocol, we have help from a pharmacist and we have a pre-measured form of precise delivery. Plus, we are able to monitor my progress and keep records more easily. It truly has revolutionalized this season of my life. AND NOTHING YOU CAN SAY can change that!
December 26, 2009 - 11:05pmThis Comment
nanashana, I can understand why you might be upset, but the question at hand is what is the actual nature of the Wiley Protocol and the people behind it. The experience of each woman who has tried it is certainly significant. Some report glowing results. Others report quite the opposite.
The Wileys and other beneficiaries of the Wiley Protocol have been caught red-handed pumping pro-Wiley testimonials (sock puppets) into the public discourse. T.S. Wiley's husband, Neil Raden, has confessed to this: http://forums.randi.org/showpost.php?p=2133249&postcount=108 It's hard to imagine why they might have at some point decided to give up these tactics.
December 27, 2009 - 3:32amThis Comment
I'm not Deb but I do have experience on the Protocol.
Nanashana, I'm suprised you're not bothered my Wiley's track record of lying on TV and the many documented lawsuits against her. If I had known I would have been less likely to believe the stuff she made up in her book about this protocol being tested. The number of women who have had hysterectomies and gone hypothyroid are legion. Any endocrinologist will tell you the Wiley quantities of estrogen antagonizes the thyroid. A lot of women who were fans initially ditched the protocol when their doctors saw it wrecked their thyroids.
I got off the Protocol after a short time but still had that brown linea nigra line on my abdomen for years before it faded.
I keep seeing her hawking her protocol at booths at conferences, trying to suck in customers to buying hormones and giving out a list of doctors, most of whom have dropped the protocol because their patients couldn't tolerate it.
WIley keeps telling people Suzanne Somers uses her protocol even though Somers has publicly said she doesn't use Wiley because it eventually made her gain weight and made her face puffy during the progesterone phase.
December 26, 2009 - 9:53pmThis Comment