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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

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EmpowHER Guest
Anonymous

According to Suzanne Somers' representative who answered my e-mail inquiry via her website, Suzanne IS currently using the WP (my emphasis added). Just thought I'd throw that in, in case it's somewhat helpful to anyone else other than me. I believe that was one point of contention on this discussion some pages back. And so you don't have to take my word for it, now you know they will answer that question. Maybe if enough people ask, she'll make an announcement on her site.

-Moyne

September 20, 2010 - 1:44pm
EmpowHER Guest
Anonymous

I am TS Wiley's son.

I currently work for my mother coordinating various aspects of our project. My mother's concern has always been first and foremost the women who take her hormones. We sadly cannot control every single doctor or pharmacist's attempt at "creativity" despite her absolute best efforts at all times to standardize compounding and make sure women get the best bio-identical, bio-mimetic hormones they can. We train the pharmacists and require methods, raw materials, pricing and packaging to be standardized. We also put warnings on the bags and on the package inserts about contraindicated supplements and over the counter products.

Patient compliance on WP can be difficult, doses change and application happens twice a day, sometimes TID or QID based on certain women's symptoms. It can take a physician some time to become comfortable with prescribing WP and adjusting it for each individual patient. All of the needed information however on how to successfully prescribe is in the Clinical Practice Guidelines Manual which was prepared by TS Wiley and physicians. The biggest problem we find when the Protocol fails is that it seems impossible to get all physicians to follow it. That's when women can have problems. Often prescribe supplements sold out of their offices that are specifically contraindicated because they fit in hormone receptors. 

There are pharmacists blatantly "knocking off" the Protocol with substitute base creams and hormones violating both our trademarks and patent-pending procedures which can change a women's response. 

I would like to sincerely apologize to all women who have not had success on the Wiley Protocol on behalf of all of those of us working toward standardization for study.

We do not have anonymous sales people plants, we run on a very lean budget and could never afford that sort of backward, nefarious or ridiculous business practice. We don't need to. The truth is, the voices of the women who have not had success are far louder than those who happily take the hormones, correctly, with good physician and pharmacist support, for years and years now without incident.

Our stance is and has always been, if you have any trouble on the Wiley Protocol, to email us (appropriate address on our website which I won't link here out of good internet etiquette) and tell us who your doctor and pharmacy are, and some background. We will do everything we can to address the issue, offer guidance, and get you sorted out.

Bio-identical hormones are a crowded, chaotic, and confusing space right now. All we, at Wiley, are trying to do is individualize while standardizing compounded hormones, in what we feel is the best researched, most appropriate way.

With standardization comes data, with data comes studies, and with studies come confirmation of clinical and therapeutic outcomes. We have thousands and thousands of very, very happy users, bother and women. They have great physician support, are dosed and prescribed by the book, and get high quality compounded product from reliable pharmacies. Unfortunately, there are far too many unscrupulous pharmacists who say they make WP and put literally anything you can imagine in the tubes.

For women who have had trouble, are you CERTAIN you were obtaining WP from a certified pharmacist in official purple and green trademark Wiley Protocol packaging? Are you certain your physician has attended a training and is listed on our website as being a certified prescriber? The Wiley Protocol is, like young life, complicated. Again, if you have tried it and experienced any problems, PLEASE tell us. You may be seeing a physician who needs a refresher, or maybe not even in our network. But if you take it, and it doesn't work for you, please look for another option. 

We have long-term stage 4 cancer patients on therapy, we have 96 year old's with osteoporosis reversal. We have 16-20 year olds with reversed endometriosis. And of course thousands of happy customers who simply take it to ease the symptoms and effects of aging.

Can I say with 100% certainty every woman who takes the Wiley Protocol will see 100% therapeutic benefit? Of course not, no medicine in the world has a record like that. In fact, many are much worse, with serious side effects. Taken correctly, the WP, with regular monitoring of blood serum levels on days 12 and 24, and without contraindicated supplements and other medications, seems to provide genuine quality of life changes for the better.

To the women who are on this forum supporting us with stories of success, thank you. That's why we work so hard here, to make women feel better, healthier, and age more gracefully.

To the women here with bad experiences, I invite you to send us the details of of your experience, your prescriber and pharmacist, and we will see what we can do, if you're interested, in remedying the situation, be it with a new physician and pharmacy, or simply a talk with your original ones. We take patient concerns incredibly seriously. Even with patients in 5 digits, Caren, my mother, and our partner physicians talk to individual patients every single day to try and make sure everyone gets the care they need. There are only so many of us, and we do our best to help everyone, and get them to the caregivers and prescribers they need. The American healthcare system is overburdened and our prescribers are not always excluded from that.

Thank you for reading, we promise to strive to improve all aspects of the Wiley Protocol as time marches on and we are able, and we wish you the best in finding what you need to age gracefully, in good health, and on your own terms.

Lastly, I do not plan on replying to comments here, as we tend to stay away from non-Wiley affiliated message boards for the sake of objectivity. You are all allowed and encouraged to form your own opinions. However, it has been a long time since we have issued any sort of statement on a forum like this, and I felt like there was enough back and forth here to warrant a response from us. Please feel free to use our website/email if you wish to contact us further.

J. Raden
Wiley Systems/The Wiley Protocol

September 15, 2010 - 1:17am
(reply to Anonymous)

Thank you for the great response to this thread Mr. Raden! I am one of those happy WP patients. It's been a year now that I've been on the protocol, and though I joke about getting my periods back after going into menopause, I am truly a happy woman. I was the first at my doctor's clinic to use the protocol, and now she has dozens of patients on it. She reported to me that everyone is responding well and so far no complaints. I am the only one who had problems when I first started using it. It took 3 month of adjusting the dosage to find what my body needed. Surprisingly TS Wiley herself called me to help me adjust the dosage! I felt surprised and honored that she took the time to personally help me. That was 7 months ago and I've been happily living a very healthy life since then.

September 15, 2010 - 8:52am
EmpowHER Guest
Anonymous (reply to nanashana)

nanashana, I have a minor question for you about your WP creams, if you don't mind. Are they white or colored?

I have recently been told that that the creams are now being colored to match the syringes and would like to hear your experience. I appreciate your candor on this forum.

-Moyne

September 15, 2010 - 10:22am
(reply to Anonymous)

Whoa, I had never heard that! They are white. Why would anyone put color in them? Won't that affect them or our bodies in some way?

September 15, 2010 - 5:23pm
EmpowHER Guest
Anonymous (reply to nanashana)

Yes, that's what I thought! One woman said her doc showed her the doc's WP creams and they were brightly colored like the syringes. Another supposed WP patient backed up her claim.

I don't put chemicals into or on my body if I can possibly help it, and that was an extra concern for me. Caren at WP e-mailed me that it was not their protocol to add the color, but I'm having a hard time separating fact from propoganda and wanted to hear it from someone I didn't think had a dog in the fight, so to speak.

Were there any particular sources of information that were especially helpful to you in deciding to use the WP? Was there anything that particularly concerned you and, if so, what resolved those concerns?

September 15, 2010 - 5:47pm
(reply to Anonymous)

The first indication where I learned how important bio-identical hormones were, is by reading Suzanne Somers' book, "Breakthrough." She did not mention the Wiley Protocol, but after reading this book, I went online to research bhrt and rhythmic dosing. That's how I found the Wiley Protocol. I poured through their website and got more and more excited about what I read. It just seemed so right to me, especially after reading what all the doctors had to say in Suzanne Somers' books (I read her next book by then as well). Then, at my next appointment with my naturopath, I asked her about it, and coincidentally she had JUST heard about it from a colleague at a convention. So, we agreed to embark on this adventure together. How about you?

September 15, 2010 - 6:07pm
EmpowHER Guest
Anonymous (reply to nanashana)

Sorry, I forgot to sign my earlier reply.

I read all Suzanne's books and then I read all the books available by the docs she interviewed (except for Sex, Lies and Menopause, for some reason....)! LOL I researched for several months and
after a false start to one of her docs, got a recommendation from him to my wonderful doc in my state who has been helping me for the last year. We've done loads to balance my body, including some bio-i hormones, and removing endocrine disruptors (like mercury) and now I've pretty much got everything cleared and am ready to fine-tune things. My doc recommended WP and I've been trying to get back up to date on the info after putting it aside for a year. I've come across so much negativity that it's really scared me and I don't feel like I can just go by the info on the Wiley site. I've ordered the book and am trying to get quickly up to speed to make a decision in a couple weeks. I didn't feel ready to do so when my doc brought it up. It's been a roller coaster just trying to gather info. I'm peri- and most testimonials are for women already in menopause, so I've really been looking for more stories of success starting it earlier.

-Moyne

September 15, 2010 - 6:25pm
(reply to Anonymous)

May you find success in your health endeavors. I feel I've found my answer in the Wiley Protocol.

September 15, 2010 - 7:34pm
EmpowHER Guest
Anonymous (reply to nanashana)

Mr. Raden,
The Santa Barbara Court house listed at least 30 law suits against your mother and/or father before they left town.

Both Santa Barbara pharmacies who were originally Wiley-certified have also sued your operation. Either the principals of the Wiley operation changed the corporation's name or you are unaware of the facts of the many legal actions against them.

September 15, 2010 - 7:58pm
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