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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

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EmpowHER Guest
Anonymous

Hi Wicked17,
I'm sorry you have to thru this.
Many of the women who suffered on the Wiley Protocol compiled their stories, symptoms and how long they were on the Wiley hormones. As you can see, most of women suffered from progesterone poisoning.
Click on the link below and scroll down there's a lot of case reports in the women's own words.
http://rhythmicliving.org/?page_id=20
This was about five years ago. Very few people who prescribe the WP have seen these reports and the Wileys blame the victims if they hear complaints.
Best of luck detoxing the progesterone. Everybody is different so I don't know what to tell you about how long it will take. Some people take two years some people take less. Keep your chin up!

April 27, 2011 - 6:26pm
(reply to Anonymous)

Actually, this is pretty misleading. I'm sorry if this post makes it sound like the gloves are coming off a little bit here, I try to maintain the most objective stance I can even though I'm an employee and advocate of the Wiley Protocol. But some things I cannot let go.

It's true that some women decided to describe their experiences on Rhythmic Living. What is not true is it's visibility: it's very easy to find and very obvious in search results about the Wiley Protocol. And in fact, any prescriber can find it easily with simple Google search terms. I don't know why some persist in slandering/libeling us on specious grounds. All were trying to do is offer a type of BHRT therapy that we believe is supported by actual science AND clinical evidence in the last ten years. For gosh sakes we started out trying to help terminal cancer patients! Isn't that supposed to be noble work? And yet somehow, we must have some evil intent. It's all really very ludicrous. By the way, the cancer patients are doing smashingly, and our results are being written up this year.

There is in fact zero clinical evidence that such a thing as "progesterone detox" is anything but pseudo-scientific mumbo jumbo. Your body's excretory and circulatory systems are extremely efficient at getting rid of things you put inside of it. That's the reason when women miss on a dose on the Wiley Protocol they feel it within hours (men too for the Men's Protocol): the hormones are gone.

I encourage everyone to work with their doctor, do their own research, and understand what certain options are, etc. However, I cannot idly sit by while people pass off fallacious and frankly laughable excuses for medical advice regarding concepts that are made up like "progesterone toxicity". Do you have any idea how much progesterone a women makes when she is pregnant? The levels are astronomical. There are no lasting progesterone toxicity events with pregnancy either. And we don't approach pregnancy levels on the Wiley Protocol. Do you think something magical happens in pregnancy? Some unicorn or stork in scrubs comes down from the heavens and imbues a pregnant women a superpower to be able to handle such high progesterone? Doesn't happen.

We are attacked by posters like the one above as lacking rigorous scientific evidence (ironically it's something we are actively gathering, unlike anyone else you might choose to get bio-identicals from), and yet the very same ones turn around in an internet forum and say something as patently absurd as "you might take two years to detox from progesterone poisoning". It makes my brain hurt to have to defend against points like this because I'm taking time out of my life to defend something that has no basis in reality.

Well, you might need to have a good bleeding with leeches, and maybe drink some witches brew and have your bile and blood humors adjusted too. There's about as much supporting science behind medieval medicine as there is in this concept of "progesterone poisoning". Look, the science and data are CLEAR, and any endocrinologist can tell you, hormones are dose dependent. Think about your birth control pills: you put in some progestins exogenously with the pill, and your body stops ovulating because the exogenous hormones trump the endogenous ones quite clearly. If you miss a contraceptive dose, you might get pregnant. Why you may ask? Because progesterone toxicity does not exist, nor does progesterone require a long time to leave your system. Like with the pill, it's between 12-48 hours (unless it's a pill form that is meant to be slow acting like Yaz, which I recommended you stay as far away as possible from).

Now if you put on a lot of exogenous progesterone like in the Wiley Protocol, it isn't simply additive. Your body puts your own progesterone production into senescence, and you have only what you put on.

The effects most women felt coming off of the Wiley Protocol was in fact due mostly to them having to remember what it was like to be in menopause and not have enough (or almost any in some cases) hormones.

I wish you the best of luck in whatever health choices you pursue for yourself. If there is anything we can do here at Wiley Systems to help address the issues you had or are having, please let us know. We have a number of prescriber's who are very adept and have more experience than others that we can refer you to. Often that can make all of the difference.

And regarding a previous post that we don't take down doctors who ask to be taken off the website again, is completely false and simply a lie. We would never want to have anyone listed on the website who isn't motivated, knowledgeable, and/or capable of prescribing. That would destroy what we're building, and contrary to what some would have you believe on the internet, we're not that stupid. Please feel free to forward any correspondence from any of these above mentioned prescriber's and I will personally ensure they are taken down without hesitation.

Best Regards,
Jake Raden
General Manager, Wiley Systems

April 29, 2011 - 2:55am

Hi anonymous,

But I do feel awful...b/p is still very high.....and the anxiety I had prior to starting the creams is still there. they didn't help. maybe its not hormonal but just GAD.
My testosterone was already high according to blood tests, as well as DHEAS. had low prolactin, LH, FSH, and 62 as my estrogen before starting the WP. may I ask how long you were on the WP and what you suffered with? how long ago did you take them and did you suffer after you came off? AD's have failed me and I thought all these crazy symptoms were hormonally related. At 55 yrs old, I was certain. maybe they are, but the WP did nothing to appease them at all.
if higher doses of progesterone act like a steroid, may that is why I have the high blood pressure problem now, even more anxious and my cortisol levels are through the roof especialy in the mornings to late afternoon. I just had blood drawn and am nervous to see what my levels are now. they were high before the WP. would you or anyone know how to get cortisol levels down? I will keep you abreast of what happens when I see a knowledgeable gyno who knows what he is doing. I hope and pray he can help me. I want to feel good again!!!!

April 27, 2011 - 10:45am
EmpowHER Guest
Anonymous

Hi Wicked17,

I'm so glad you were able to go off the Wiley hormones cold turkey without feeling awful. That's a great start to reclaiming your health. The only reason for tapering off is if the estrogen withdrawal gives you bad headaches or other problems. Since you're alrady feeling better you can play it by ear and add a little estrogen back if you feel you neeed it before you see the doctor.

When progesterone is taken in smaller doses it seems to be the calming hormone. When taken in large doses, progesterone (a potent steroid) seems to act more like testosterone, causing steroid rage and anxiety.

I'm sorry you had to go through such a hard time --and that certain doctors are still not providing full disclosure about the serious side effects possible on the Wiley Protocol.

Put you pulled yourself out of it and should be proud. Take care of yourself and let us know if you find a more workable BHRT program.

April 27, 2011 - 6:11am

Hi Anonymous,

Thank you so much for your help. I didn't taper down, just went cold turkey. I hope that was okay. again I wasn't on it long enough according to Caren to not be able to stop altogether. I hope I did the right thing. when I stopped I was on 19 of my second cycle (started on March 11th of 2011) and was taking 4 lines of estrogen and 10 lines of Progesterone. the week before I was told to increase the estrogen by 2 lines each time, which I did, and I think that is when all hell broke lose, immediately my b/p went through the roof. I was under the impression that progesterone was the "calming" hormone but all I had was worse anxiety, more so than when I started the protocol. Now I am relieved I am off, but still not sure if I did the right thing by just stopping and not tapering down. I didn't want to have to make my own schedule since I have no idea how to do it and cause more damage. I do see a gyno next week and I am going to tell him the whole terrible story and see what he sees and suggests. could you please address the tapering part to me. I don't think I want to have to go back on it just to taper off. today is day 2 of no creams whatsoever. Thanks so much take care...

April 26, 2011 - 10:10am
EmpowHER Guest
Anonymous

To answer the question, how long does it take to get the hormones out of your system, that was never studied or tested by the Wiley organization before they began promoting and selling the protocol. Usually, that is the first thing studied. That's why the ethics of the Wiley Protocol have been questioned by doctors and scholars.

From my own experience and many others, the estrogen wears off rather quickly if you taper down to a sensible amount. But the progesterone gets stored in the fat cells and organs so it may take at least two years.

The damage the high doses may have done to your thyroid or other organs during that time seems to vary. Be glad you were smart enough to quit before the damage got worse. Some people went thru what you did for a year. The anxiety can be brutal on the Wiley Protocol but I haven't met anybody whose anxiety persisted after they quit the Wiley Protocol and went on a bioidentical regimen prescribed by an experienced practitioner.

Good luck and check back with us.

April 26, 2011 - 7:22am
EmpowHER Guest
Anonymous

Accusations of funding should be backed up by evidence. Until then they're just empty attempts to smear those whom you do not agree with. And anyone making them is obviously being funded by the Wiley organization. (I hope you get the joke and the point.)

April 26, 2011 - 2:35am
EmpowHER Guest
Anonymous

I stopped the WP as of today, and nervous that I just stopped. am I supposed to keep using the estrogen to cover up the toxics of the high progesterone levels. now I know why my b/p went up so high, toxicity of progesterone that has built up in my fat cells. yesterday I couldn't stop the pounding and skipping heart. today I have a vicious headache, very lightheaded and very tired. I had to take a valium to get through the day. I don't want to take them but this anxiety is crazy. I am going to see a new gyno in May who a friend recommended and maybe he can give me BHRT in doses that won't be so toxic and high compared to the WP which is the worst. maybe for some women, it works but not for me.....does anyone know how long it will take for the hormones to get out of my system?

April 25, 2011 - 6:15pm
EmpowHER Guest
Anonymous

For an accurate history of the Wiley Protocol go to
www.wileywatch.org
There are videos, victims reports, legal records.

April 25, 2011 - 4:12pm

Here's my personal testimony, unlike Anonymous, I'm a real person who has no vendetta or agenda:
http://www.youtube.com/watch?v=rKYYhCYM-aw

My advice (oh and I guess you're going to attack me now Anonymous because I'm giving medical advice like we all do when someone asks a medical question in a forum?), is to call the Wiley people directly and give them your timeline and your symptoms. It is SO worth it to finally get hormonally balanced the way that our bodies were designed. Also, read as many Suzanne Somers books as you can get your hands on because it's not just about getting hormonally balanced naturally but there are several steps to health and wellness. Change your diet accordingly (cut out sugar in all it's forms!) and drink a lot of filtered water (no flouride). The progesterone cream didn't absorb into my skin at first either. It was weird that way for me. The pharmacist suggested I use a little bit of water with it and that worked. The other thing that has worked for me with regard to the progesterone cream is to divide the total daily does into 3 dosages throughout the day, and I always put 1-2 lines directly in the labia. That alone has made a huge difference!

Anonymous, I am finally at the point of laughing at you. I almost feel sorry for you that you waste so much of your energy fighting The Wiley Protocol... unless of course you're PAID for it. Then, I can actually see how you put so much energy into it! In any case, you simply cannot fight personal testimony. You troll this thread just waiting to find someone, ANYONE, with any kind of medical problem that happens during the same time they are on the the protocol. Then, you pounce and use that to promote your own (or your employer's) agenda of fear and suspicion. I've been watching it for over a year now. It is the same story over and over. Anyone interested can just read through this thread and see how this Anonymous person who won't even reveal who they are, has attacked any of us with success on the protocol, and fed the fear of anyone with health problems.

I was the first patient my naturopath put on the protocol before she went to get training to be certified because I asked her to after doing my own research. Both Caren and T.S. Wiley helped us figure out my perfect dosage and stayed with us through the first 3 months answering endless questions. Now there are dozens of patients at my local clinic who are on it, with their own personal tailored dosage. That's just here in a Seattle suburb. There are patients all over the world on it!

It has changed my life!

BTW, if Caren has a real estate license in CA, then good for her! I have a real estate license in OR. It doesn't mean that I don't know what I'm talking about in my current profession. Anonymous's arguments always attack The Wiley People personally and continually cast doubt based on nothing they can prove.

BTW, I would never have found The Wiley Protocol unless I had read Suzanne Somers' books. I'll throw her name around! Go ahead, Anonymous, attack me now! It's just what you DO!

April 25, 2011 - 8:16am
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