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AJUSTING TO LUPUS

By September 19, 2011 - 9:46pm

I WAS TOLD IN AUGUST THAT I HAVE LUPUS AND I AM TRYING TO COPE AND DEAL WITH THE SEVERE PAIN THE DOCTOR SAID I CAN NO LONGER WORK AND THAT I NEED TO AVOID THE SUN SINCE I AM NEW TO THIS HOW DID EVERYONE AJUST TO THIS ??

By September 24, 2011 - 6:48pm

I was diagnosed with lupus March 4 ,2011. Since then I've also been told I have Gastritis. I am a person who just deals with things as they come, but I'm having a very difficult time dealing with this because my doctors aren't on the same page about anything. For example my primary care physician gave me Ibuprofen for back pain and a month later I go to my G.I. doctor who tells me I can't have Ibuprofen because it's bad for my stomach and can worsen my condition. Since he couldn't prescribe me anything for my back pain he said use the Ibuprofen sparingly. The choice I make every day is to have severe back pain or play roulette with my stomach. I'm just tired of waking up hurting every day. Now the pain includes my joints. I just want someone to share with me what has worked for them.

September 24, 2011 - 6:48pm
By September 24, 2011 - 12:15pm

THANK YOU FOR THE HELPFUL IMFORMATION IT HAS HELPED ME OUT I WAS SEARCHING FOR ANSWERS WONDERING WHAT TO TELL MY KIDS AND AND SINCE I CAN NO LONGER WORK MONEY IS VERY SCARCE THE PAIN IS SO BAD GETTING OUT OF THE BED IS HARD I SEARCH THE COMPUTER FOR ANSWERS FOR WHY AND WHAT TO DO FOR RELIEF ...... ANNNETTE

September 24, 2011 - 12:15pm
By September 23, 2011 - 11:42am

Hi Ms. Boopz,

When I found out I had lupus, I freaked out. A childhood friend lost her mother to lupus, so I thought this meant I will die too. And I will. We all die at some point. I just really don't want to go before I've at least met all my grandchildren. Anyway, when I freak out about something, I try to learn everything I can about it. I obsess about it. I'm the kind of person who has to watch when the doctor takes my blood. I just have to see what's coming. My dad's client who has lupus advised me to avoid reading about it; everyone is different, she said, and reading all the possible symptoms and outcomes would be unnecessarily frightening. I went ahead with my research anyway. At first I was overwhelmed and frightened, just as she said I would be. But eventually I became more desensitized to what I was looking at, and my fear lessened. I also took comfort in knowing that organizations like the Lupus Foundation of America are doing everything they can to find better treatment for our condition and maybe even a cure someday. In addition, it's nice to know I'm not alone in this. I have family, friends, and fellow lupies who lift me up when faith and hope seem out of reach.

~ Stef

September 23, 2011 - 11:42am

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