Hi Pat.....bone pain after chemo
I am on a trial drug and take it once a month 9 consecutive days....18 shots...which I make myself....I should get paid LOL!!....have been doing this for 4 years now....and I am in cytogenic remission thank god....it has been back and forth and up and down....I have had chronic myeloid leukemia for 12 yrs. on May 3, 2011 and so far have been able to stay above and beyond the curve as we say here at Roswell Park Cnacer Instutite in Buffalo, New York....I suffer from bone, muscle and joint pain and yes definitely take medication to help with that otherwise I would have no quality of life and that is what I want most with being a grandmother of 4 boys....3 toddlers and one newborn and I am 65 young and that is the way I want to keep it for as long as I can.....please reply would love to hear your story Pat....you are not ALONE!!!
Hi Susan - I'm sorry to hear you are dealing with bone pain after chemo. This is, unfortunately, fairly common. You can find more information on what causes this, and what can be done to treat it, from this new interview on Patient Power, a site founded by fellow leukemia survivor Andrew Schorr. http://www.patientpower.info/cancer-pain
There are also resources to assist you through Roswell, the National CML Society and the Leukemia and Lymphoma Society. I would also be happy to help you locate online support groups where you can connect with other CML patients if you send me a private, direct message.
Take care,
April 25, 2011 - 11:49amPat
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