Yes! I also have EDS. It took me 11 years of active hunting for an answer to what was happening to me and to find a doctor to diagnose me because I looked so normal. Nobody knew how my body was falling apart inside. I was told that doctors were always taught if you have someone with EDS you'll know. Why? Because we come in with chronic debilitating headaches and say, "by the way, I'm flexible." We don't even know that our flexibility is that weird! We trust doctors. They need to be looking for these things.
Add a Comment5 Comments
Yes fibro and rsd!! I have learned in my life that my diseases make me a stronger person!
May 16, 2011 - 12:14pmThis Comment
Yes! I also have EDS. It took me 11 years of active hunting for an answer to what was happening to me and to find a doctor to diagnose me because I looked so normal. Nobody knew how my body was falling apart inside. I was told that doctors were always taught if you have someone with EDS you'll know. Why? Because we come in with chronic debilitating headaches and say, "by the way, I'm flexible." We don't even know that our flexibility is that weird! We trust doctors. They need to be looking for these things.
May 13, 2011 - 7:40pmThis Comment
Fibromyalgia is what I was told I had.
March 30, 2011 - 10:11pmThis Comment
Yes, Chronic Fatigue Syndrome...noone thinks its a real diseaseand that I am just tired and need more sleep..ARRRRG!
March 27, 2011 - 5:39pmThis Comment
Ehlers-Danlos Syndrome
March 26, 2011 - 7:22pmConnective Tissue does not show in MRIs,CTs&Xrays
This Comment