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Shingles very complex

By Anonymous July 18, 2017 - 1:44am
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Have had shingles over 10 yrs off and on. My Primarycare dr sent me to Infectious dr. I couldn't take the three shingles Med one started valorez fan or and another. Excuse spelling. Plus couldn't use the cream broke skin out worst. As the yrs go by the frequency of our breaks are worst. The past 3?yrs I haven't been able to work sit longer than 14 mins or so. I went to pain clinic and he gave me a shot end if tail bone close to top of butocks crack. This made the shingles worst spreading on the right side upper waist area. And severely worse right side on buttocks and can't sit very long I had it on my wrist once about 4 yrs ago. Also in May of this yr I broke out mid Thoracic. I was about to call 911 then I saw the blisters breaking out. Now waist lower back righ side of leg. Is blisters now and the mid Thoracic is breaking out. All these area u have had several surgeries also navel has broke out and abdominal area got so bad it looked like. A rare pcs if meat. I have had 4-5 surgeries in abdominal. 6-8 in navel. 1tumor on mid Thoracic. Also had a bikini line total abdominal and bladder rack on abdominal area. Navel 6/8. Bleeding internal. Poplys severe pain Also gallbladder making 4 area cut because if scar tissue poplys internal bleeding and pain. Had 1 pregnancies in right tube that ruptured on Christmas Eve had to remove tube this was done bikini line. Had total hysterical and bladder tack and ovaries removed also on bikini line had Hernia when I was about 7 yrs old from navel to down too bikini line. I get one place shingles heal and another place breaks out or worse I have several places broke out and more started to break out. I have had 3 cultures back in late 1995 not counting the positive herpes ll. Had 2 positive shingles and 3 rd one had no blisters therefore it came back inconclusive bc no blisters with fluid. I tried to tell pa this wasn't going to be accurate bc drying up but she said let's try. I was in so much pain I said ok so she wougive me some pain medicine. Back then it was darvocet which they pull off for resale. My infection dr said that as long as my primary care dr was safety caring enough I could stop seeing her to save money. So Primarycare dr gave me Darvcet Xanax Pherganam and my bloood pressure trandate and lipisol and Atorsavis(cholesterol) and pain med (oxycodone) from pain clinic. Also have phenergan supportise pen. So I can keep medicine down. It's hard to eat and feel tired if I do things here at home. I use a cane sometimes if feeling dizzy i try to do light excercize beside the bed or lying in bed using latex stretching bands different strengths with legs feet thighs and arms. I can't sit more then 15-25 min at a time because tail bone severely hurts bad. I get car sick if riding very long in a car. Hopefully things will improve r get under control a little better. I know I will never be pain free but hopefully will get under better care so I can visit our son in VA. He coaches. I gave in to infectious dr but dr Autin no longer practice in this area now. So I saw a dr garwood in hickory. My pain clinic dr try a shot in the end of tail bone and in top of buttocks crack after we talked long and hard. So I wa willing to try this bc I so wanted to go see our son as head coach. But the. Shit made it worst. Spreading to the upper waist area right side of hip thigh and more on the crack and tail right side. Was vomiting fever pounding stinging. Itching and areas feels like in fire. Please can you help me. Should I go to a dermatologist chg from Primarycare to a internalist or infectious dr. I know as I get older my immune system is weaker bc I can't fight off sickness like I use too. I have not worked in the past 3 1/2 yrs. I can't walk far and get dizzy. So it's not safe as this to walk or drive bc I can't move real fast. Hopefully I will get better and start doing more things. I still have my license and I want to work and enjoy life. I don't want no stronger medicine. My question is can shingles get in your bones blood. Etc. if so, what type of test do they have. Since cultures are completely out of the question bc it just makes it worst in pain and spreads even more. Also I think I have some places in my scalp bc it itching. Stings burn. And headache plus feels like 750 hundred pounds. Then I find scabs when I comb my hair looks just like the ones on my lower back. It's really hard to take a picture of scalp bc of hair. And not being able to take pictures bc of pain.

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Hello Anonymous,

Welcome to EmpowHER. Thank you for reaching out to our community.

You have indeed had more than your share of illness and pain. Shingles is a viral infection that causes a painful rash. Although shingles can occur anywhere on your body, it most often appears as a single stripe of blisters that wraps around either the left or the right side of your torso.

Complications from shingles can include:

Postherpetic neuralgia. For some people, shingles pain continues long after the blisters have cleared. This condition is known as postherpetic neuralgia, and it occurs when damaged nerve fibers send confused and exaggerated messages of pain from your skin to your brain.

Vision loss. Shingles in or around an eye (ophthalmic shingles) can cause painful eye infections that may result in vision loss.

Neurological problems. Depending on which nerves are affected, shingles can cause an inflammation of the brain (encephalitis), facial paralysis, or hearing or balance problems.

Skin infections. If shingles blisters aren't properly treated, bacterial skin infections may develop.

Anonymous, to my knowledge, shingles does not affect the blood or bones.

Hope you get well soon,

July 18, 2017 - 8:12am
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