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Looking for a doctor for my arachnoid cyst

By August 20, 2010 - 2:04pm
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trying to find a dr.

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My 14 yr old son just had a pineal cyst removed and an arachnoid cyst was discovered and fenestrated. We are very happy with our Neurosurgeon, his team, and facility. We live in MI and are more than happy to continue our care in TX as we were treated extremely well. This is a great webinar by Dr Dong Kim. Feel free to discuss our experience with us!

September 7, 2014 - 2:40pm
(reply to takeuproot)

My brother has a 3cm arachnoid cyst in the third ventricle. One Boston doctor said they don’t do anything when the cysts are in that ventricle and advised to try to live with it. I’m hoping we can find a great surgeon who can help him. He says it feels like a blood pressure cuff is on inside his head.
Was your son’s cyst in the center of his brain like my brothers?
Thank you in advance for responding

October 21, 2019 - 4:52pm

I had a rachnoid cyst on the back of m brain . I had hydrocephalus too . I first did the third ventriclstomy to relief the pressure. It dint work nd I had another surgery . Fenestration of cyst . My Dr is very god I would recommend him . DR MARK LUCIANO AT CLEVELAND CLINIC .CLEVELND OHIO

October 19, 2012 - 8:39am
Expert HERWriter Guide Blogger

Hi James wife - Finding a physician who has experience in the treatment of arachnoid cysts can be very challenging. While we are not able to provide you with a specific physician recommendation, we can assist you in the process of finding one. Please join our new Group, Arachnoid Cyst Support Group, where you can talk with the other members and share information. You can find the group at this link: https://www.empowher.com/groups/arachnoid-cyst-support-group
We have several members with a lot of knowledge in this area, and I know they will want to help you.
Take care,

August 20, 2010 - 4:30pm
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