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Living with an ankle fusion and subtalar fusion--Any advice?

By March 30, 2010 - 9:51pm
 
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In January of 2009, I fell from a ladder and suffered a catastrophic open-bone fracture of my talus. Not only was the talus shattered, but I immediately developed a serious infection and subsequent deep wound. 9 surgeries, 8 months of IV antibiotics, 9 months on a VAC device, and 15 months of walking in a boot, later . . . I am now looking at life following a complete ankle and subtalar fusion (no part of my ankle moves--except my toes). I am overjoyed that my fusion surgery was successful and am looking forward to learning how to walk again! I was just given the go-ahead from my doctor to begin using MBT shoes and to start physical therapy. I am just wondering if others have walked this road before and have any advice or insight. Thanks so much. Anneh8sldrs (Anne hates ladders)

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Anonymous (reply to Anonymous)

I was in a car accident 2 years ago that shattered every bone in my foot. I had an external fixator for 10 weeks. After surgery number 3 with my first surgeon ( a podiatrist..... first mistake ) he gave up me because he couldn't get my foot to 90 degrees. I researched other doctors and found a reputable podiatrist ( mistake number 2 ). He got my foot to 90 degrees by shaving bone and removing bone fragments. After the cast came off I had so much nerve damage that my foot felt asleep 24/7 and still does.
He wanted to do another external fixator surgery and I cancelled at last minute ( my little voice said to ). I found an orthopedic specialist ( mistake number3 because I didn't go to him first, but who knew?? ). He looked at my x rays and couldn't believe the disaster inside of me caused by unqualified doctors. Hence, my right foot was fused with 16 pieces of hardware. It is so bad he could only get my foot to 87 degrees so now I walk with a limp and my hips are killing me. He said he could amputate ( what?!!) but couldn't go through with it. I am now thinking if this is the way to go ?? All my other doctors say no and well as friends BUT nobody knows what I am feeling. At this rate I'll have a hip replacement within the next five years. And STILL no relief. Orthodics haven't helped and now I'm back in PT. To top it off I am a restaurant manager and bartender at a very high volume restaurant in FL and working 50 hours a week on my feet running ( hobbling ) around. I don't know anything else for a career. I am 47 years old and not a book smart person to even consider going back to school. I really need to start what is next. My pain management is morphine, opioids, steroid injections in my hip and synthetic nerve blocks in my spine. Still suffering every day. It just sounded like I answered my own question..... maybe amputation is all I have left. Very scary. What would you do?

April 14, 2016 - 9:50am
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Anonymous

Im 20 years old and just had my subtalar fusion a week ago exactly. I had severe arthritis and was born with a rigid subtalor joint. my surgeon did and excellent job and I am already in no pain. They took a bone graft from my pelvis as well which hurts more than the fusion itself. All in all I can already say my arthritis pain is gone and all I can feel is soarness from the screw.

November 27, 2015 - 12:49am
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Anonymous

I was thrown from a horse seventeen years ago breaking my leg in four places and crushing my ankle. After surgery and wearing a fixator for several months, my leg healed fine, but I have had nine surgeries on my ankle. This last surgery my doctor fused all the joints in my right ankle. The only part that will move are my toes. I will be non weight bearing for twelve weeks and I am so ready to be able to put weight on it and start walking on it again. These past seventeen years have been a nightmare. The pain I have endured with my ankle has been unbearable and I am hoping now I will get some relief from this last surgery.

November 1, 2015 - 5:24am
EmpowHER Guest
Anonymous

So fell of a roof on 17/9/15 broke talus in 10 pieces and 4 fractures no surgery can be done due to how bad and the surgeon is not confident he can fix it so meeting it heal by it self (taking its god damn time) then he recommends a sub talar fusion as my joint is no longer any good there touching must of compressed when I hit the ground so just was wondering if anyone else just got a sub talar fusion and how's there foot now

October 2, 2015 - 8:36am
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Anonymous (reply to Anonymous)

I had a car accident in 1986 broke fibula and tibia. I was 20 at that time. Now 49. I have been in pain for years and bones were not set right. In may this year a doctor removed all my bone spurs and repaired a ligament. Unfortunately that left me with more severe pain and unable to walk without excruciating pain because all he did was made my ankle move more and rub more which I had no cartridge so it only made me rub bone to bone more. So beware if a doctor has you go that route. This doctor only had me do that because he didn't do fusions and he was money hungry. Same dr told me I needed back surgery and two knee replacements.
Anyways Sept 2nd this year I had a fusion by another doctor. I am still using walking boot. Dr told me a week and half ago I can go out of boot which I went cold turkey and walked around with swelling and dealing with massive pain. Therapist told me to go back into boot and gradually come out. I was so happy to come out of boot from being in cast etc since May (first surgery) that I really over did it. So go slow! I also had my acheles tendon shortened and I have to say that is the worst pain right now I am experiencing. Everything else is working it self out pretty good I guess. Therapists says could take year before I can really walk and enjoy things. Just great! I am just hoping I can be pain free for first time in a very very long time. As far as walking I dont feel any different really as far as motion goes because for years I couldn't move ankle well anyways probably due to massive arthritis. I wish you the best! Julie

November 17, 2015 - 7:28pm
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Anonymous (reply to Anonymous)

I had a sub-taler fusion Feb 2013. I was in pain for 23 years after a mc accident. My life is great and pain free today. My ankle fused completely in about 2 months. Why 2 months? I stopped drinking alcohol 2 years before the surgery and I have not had carbonated drinks like soda in over 15 years. I drink water, chocolate milk and coffee. I'm 50 years old and feel like I'm 20 again. Good luck.

October 31, 2015 - 1:55pm
(reply to Anonymous)

I had a full fusion in 2004. I'm doing ok, just wondered if you have any lingering back pain from the way your body adjust to the fusion when you walk. I do, and I feel like I am constantly at the chiropractor! Just wondering if this is normal.

November 23, 2015 - 10:42am
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Anonymous (reply to Anonymous)

I had fusion Sept 2, 2015 I am Still in lot of pain mostly the Achilles Tendon. I went out of boot few weeks ago cold turkey which caused massive pain and swelling. Physical therapist told me go back in boot have to go out gradually. It's been rough as I had a previous surgery on ankle in May and went from that surgery to this one.
What can I expect? I feel like if I didn't have the achilles tendon shortening then I wouldn't be in as much pain. Feel like it has been forever since I have been able to get up and do simple things clean house etc.
How long did you heal and was able to walk with no pain?
Thanks Julie

November 17, 2015 - 7:37pm
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Anonymous (reply to Anonymous)

In 2004 I had a bad horse riding accident and after a couple of years in pain I finally had a sub talar fusion in 2006. In May this year I had to have the screw removed along with bone spurs and a full ankle debrivement. I am still in the same pain now as before. I can walk with a slight heal but bear foot I really struggle. A fusion has made no difference to me at all. Think long and hard before having this surgery.

November 24, 2015 - 9:55am
EmpowHER Guest
Anonymous (reply to Anonymous)

Hi yes had an ankle fusion and subtular joint in July 2015 I am in week 14 and still unable to walk properly.
The surgery was painful but bare able I was non weight bearing for 6 weeks and in an aircast for however long it takes!
This is my second major operations as I previously had my heel moved tendons lengthened and plates over toes. So I was already poorly before the next op.it is expected to take me 2plus years to make a full recovery as I have fibromyalgia as well.
This for me is a foot deformity as oppose to an injury, when the right foot is done I need to do the left as well!!

October 15, 2015 - 12:40pm
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