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Living with an ankle fusion and subtalar fusion--Any advice?

By March 30, 2010 - 9:51pm
 
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In January of 2009, I fell from a ladder and suffered a catastrophic open-bone fracture of my talus. Not only was the talus shattered, but I immediately developed a serious infection and subsequent deep wound. 9 surgeries, 8 months of IV antibiotics, 9 months on a VAC device, and 15 months of walking in a boot, later . . . I am now looking at life following a complete ankle and subtalar fusion (no part of my ankle moves--except my toes). I am overjoyed that my fusion surgery was successful and am looking forward to learning how to walk again! I was just given the go-ahead from my doctor to begin using MBT shoes and to start physical therapy. I am just wondering if others have walked this road before and have any advice or insight. Thanks so much. Anneh8sldrs (Anne hates ladders)

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Anonymous (reply to Anonymous)

Anonymous
To your traumatic accident while at work in 2015.
My story, degeneration right ankle over period of 25+ years of pain. Finally underwent ankle fusion Nov 2014, moon boot, plasters, Exogen pulsed ultrasound six months daily, nothing working, finally revision surgery April 2016 with bone growth hormone, two titanium plates, 6 months later still in moon boot, pain after small walks. Nov following third party recommendation started daily consumption of circa 30,000 units (thirty thousand) international units of vitamin d3. Also consumed standard doses other vitamins, calcium, omega oils. Phenomenal improvement within six weeks, yesterday stood on moon boot for two hours watching my son play rugby match. No pain. I can't believe what it feels like to be without pain. PS my surgeon specifically said there was no need for me to take food supplements. I believe in prayer and that prayer led me to articles on vitamin d3. I suppose it's kinda saved my life, I was going mad. Suggest you read up on d3 and get advice. God Bless..

November 28, 2016 - 10:46pm
EmpowHER Guest
Anonymous

There is a brace that enables me to have an active life again. Ankle fusion is about the only option for me, due to AVN of the talus (which is dead portions of the talus bone resulting from a fracture). The brace takes the weight off the ankle, and holds it and the foot in place. It is like an external prosthesis. I was done being active, only limping short distances with a boot. Now I am back to being active! I have only had the brace a few weeks and still have a long way to go to bring back my atrophied muscles, but I have already gone for a 5 mile hike up and down a steep mountain, ran and jogged short distances, and I can JUMP! Hopefully I can hold off getting a fusion, but even if I get one I can still use this brace to be active. The brace is called an ExoSym and you can look it up on the internet to find out more about it.
Good Luck with everything.
Sue

August 4, 2016 - 12:41pm
EmpowHER Guest
Anonymous

Fusion was about my only option until I found a brace that lets me be active, without pain, despite AVN of the talus (which is dead parts of the talus bone due to a fracture). I was done doing anything but limping short distances with a boot on. Now I can hike, jog, run, jump. I have only had this brace for a few weeks, but I have already gone for a 5 mile hike up and down a steep mountain. I still have a long way to go as my muscles are atrophied on my injured side and I need to work to build them back before I can jog or run long distance. But I can run short distances! The brace is called ExoSym and it takes the weight off the foot and ankle. It is an external prosthesis. You can search ExoSym brace and look on the internet about it. So sorry about your ankle injury. Sue

August 4, 2016 - 11:32am
EmpowHER Guest
Anonymous

I had my fusion in 2009, was not allowed to put weight on it for 4mos, the first month I started to walk the ankle swelled up, no pain. Second month I was good to go. I walk an hour everyday, work out with weights, swim and do the elliptical for 30min a day. Elliptical is better than the treadmill for the ankle fused people.I had to eliminated tennis and running. I also got a handicap tag, you can download the form and bring it to your doc to sign, is comes in handy, so you can access buildings easier through the ramp at the handicap spot, no curbs,and I bring it with me when someone else drives so I can have easy access. Curbs and steps are my nemesis and I avoid them. I can still golf but I must go up the steep T boxes or terrain backwards.
Persevere and hang in, it will get better and let people know that you can't do steps or curbs. I always ask if there are elevators at venue/office. I did not walk in the boot as it hurt, so I took it off and put on a shoe, didn't tie it up and used crutches until I could walk,if the walker boot is not put on correctly you will have pain and not be able to walk, that happened to me, so I chucked the boot and crutched it for a while. Be your own advocate, let the doc know. Remember the doc is a carpenter,putting screws and plates in your joint.

July 20, 2016 - 7:37am
EmpowHER Guest
Anonymous (reply to Anonymous)

'Tks I'm gearing up for ankle fusion in 2 weeks.hopen for similar results.just want my life back.already had fore foot fused 11 years ago.had a pretty good run.just what to get back in the gym and walk without this agonizing pain.

February 7, 2017 - 8:18pm

Hi I'm 19 year old female and would like some advice back in 2006/2007 not sure when I fractured my right ankle in three places, had a cast on for 4 week and was all fine.

I then proceeded to have physiotherapy to help strengthen my ankle where she proceeded to make a comment that I was walking with my ankle out to the side so she stuck tape on it to keep it straight and then referred me to somebody else.

I had it manipulated because of the way it was positioned and lack of movement to try and make it more flexible, I then around 2008 was still having issues where they done a scan and put me in a boot for 6-8 weeks and then told me after that time that I was just a bad sprain and have me a splint to use that was useless.

But since the it is constantly got the same swelling every day, I have movement but is limited and can only be moved when pushed by someone else, pins and needles.

I have quite bad pain and aches most likely every week and it shoots pains up my leg, really bad balance where I constantly fall or go unbalanced at the simple thing of putting a sock on or Shoe and walking in a straight line I'm sick of saying I'm sorry because I accidentally bumped into Someone because of my balance.

It then makes me limp and it still angles out to the side and that's the way I walk and always have since I suffered this injury which was almost 11 or 10 years ago.

I am going to make an appointment at the doctors this week, but scared as because of my age they just always pass you off and say it's fine it will go, I can already rule out arthritis because I had that tested because my toes and fingers are crooked, I want it seen too, as I would like something done or seen too as I want to be a paramedic and am scared of this stopping me because of pain of being on feet for an amount of time, as you can't be unreliable in that job, I only have one more year left at college and then university for two years.

Has anyone suffered from anything similar or has any suggestions as I loved playing football and still do but it always buckles, swells and causes pain so I can't play and I would love to become more active.

July 10, 2016 - 7:09pm
EmpowHER Guest
Anonymous (reply to Multikatie)

Hi there, if you haven't already, get an MRI, you probably have Ligament or Tendon damage. Getting onto this early is key. See a physio or othopedic surgeon.

Cheers

February 4, 2017 - 8:18pm

I have just had my 3rd fusion, originally i had just my subtalar fused as i shattered my heel in 1995. After a year the pain was worse and subtalar was not fusing and my anklle had now become very damaged and also my cartilage was shot . My second fusion was to redo the subtalar and also the ankle using some fibul bone from my leg, another year went past and all joint were non union andpain was still bad. I have just had my 3rd fusion (22,6,2016) which is subtalar and ankle but this time i have a plate down the side of my leg which is ment to be more solid and have had some bone taken from my pelvis. Had my clips and stitches out yesterday and and a nice new plaster from the knee down, i am not very excited as i am expecting the same results as the last 2 ops but you never know this one might work :). I live in Hastings and my kids love going to the beech and are always puzzled as why i cant go in the beech, things like this do get you down as stairs and any uneven surface are a nightmare but i just hope the pain goes as it is just getting me down.

July 5, 2016 - 4:30am
EmpowHER Guest
Anonymous (reply to Matthew Radford)

I had my ankle totally fused,4 screws. No movement whatsoever.
I have adjusted by eliminated steps and curbs, I go around them or ask if there is an elevator at the event/office I will be going to. I also have a Handicap Tag that I use and take with me when someone else drives so I have access to easy entry. You can download the handicap form and take it to the doc to sign.
I had to eliminate many activities, tennis and running are out, but I can walk and use the elliptical, weight training and swimming are good. It is a matter of adjusting and accepting your new life. My family knows I cannot go to the beach and accept it.
I was not able to put weight on my ankle after surgery for 4mos and the the first month I had a lot of swelling and minimun pain. It should get better for you and make your OWN destiny.
I wish you the best.

July 20, 2016 - 7:26am
EmpowHER Guest
Anonymous

I had the STAR ankle replacement in early January, 2016 and am so happy that I did not have the fusion. l am a swimmer and scuba diver. My gate is normal which is a problem with the fusion and I can use fix and swim as before. The ligament was also repaired and that took a little longer to heal. But after only 8-10 weeks I was walking normally with occasional mild pain.
If possible this is the way to go.
I had to insist on consultants and had to see many many medical personnel to finally get approval for the implant but it was well worth it. One should insist on consultants for the implants. The STAR is good because you have the same movement as your original ankle.
Ellen

May 16, 2016 - 12:54am
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