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I have been dealing with this for 18 months, some days are better than others. My problem has progressively gotten worse over the last 6 months. Nero said I had neuropathy walk more. Then my back would hurt more and didn't answer why its in my arms also. Spine doctor said not my spine all clear .had several MRIs brain, back and chest all clear. Neuromuscular dr is gonna do a EMG test but not till June. Legs are like jello I have shaking all over, muscle twitches, and slurred speech and its getting worse. all this time no answers no relief either. ruled out CIDP & MD/MS. Any ideas ? prednisone was no help.
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Hello Anon
Thank you for writing and I'm sorry you're in such pain.
Since you are working with several spine/neuro specialists, we are not qualified to help further - we simply don't have the experts needed. It seems you may not be dealing with an auto-immune or neurological issue and your spine is normal, according to your doctors.
But something is certainly wrong. Were you checked to see if you had a stroke?
May 9, 2018 - 1:52pmSusan
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