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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

Add a Comment317 Comments

(reply to Anonymous)

Thanks so much, Anon. Your experience sounds positive and interesting. And yes, the more we find out about sleep, the more crucial it seems. I think I know of the doctor you mean and I'll seek out her website and read more. Thanks so much.

July 30, 2009 - 10:11am
EmpowHER Guest
Anonymous

Indeed. BHRT holds huge promise and should be explored and understood and put to good use by honorable, reputable people. But in my observation this also happens to be a gold-rush situation that is attracting opportunists concerned primarily about enriching themselves while they figure out the best window dressing.

July 22, 2009 - 5:46am
EmpowHER Guest
Anonymous (reply to Anonymous)

as is with anything new out there, i'm sure you are well aware. BUT as women i feel we should support women that are trying to muddle our way and as with anything new we are the studies and we share our results good and bad and we support each other in trying to have a happy and fullfilled life. being nasty and mean and disresepctful of others expreience is not supportive or in any way helpful. i'm interested in being the best that i can be with whatever method works for me and i'm very interested in hearing what other women have to say about wiley. i left a "doctor" to go to a np because the doctor i was seeing was just there to make money off me, spent 2 minutes with me and charged me 200 dollars and i wasn't feeling better. my np spent over an hour with me because that's what she does to get to know you. she has a lesser degree but she has a mountain more of knowledge. a diploma doesn't mean you have any knowledge or expreience, it means you made it through school. it is meaningless unless you have studied and worked in what you are preaching about and treating people for and frankly most doctors are taught to push pills and make money. i much prefer seeing someone that has actually done the research and that the field is their passion and they are advocates for women.

May 15, 2012 - 7:42am

Anon,

Thanks so much for your comments and your links. I was unaware that there was this much controversy over her protocol; reading up on it has made me not interested in exploring it further.

The amount of information that swirls around about women's hormones and hrt is astonishing, contradictory and very difficult to absorb, even when you're an information nut like me. I can't imagine how we're all supposed to feel our individual way through it all to find the best solution for ourselves.

Thanks again. Good information you shared.

July 20, 2009 - 9:18am
EmpowHER Guest
Anonymous (reply to Diane Porter)

There is controvery for anything you look up medically on the internet, I have a feeling a lot of it is by BigPharma wanting to discredit what they don't produce.....I am well aware of the Wiley controversy, and knowing that I made my decision to try it---it was one of the best decisions I have made health wise and I stand by it.......I am not paid by Wiley, just a very satisfied user.......

December 14, 2009 - 12:33pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Controversy is one thing. Posting fake testimonials is fraud.

December 21, 2009 - 3:45am
EmpowHER Guest
Anonymous (reply to Anonymous)

How do you know these testimonials are FAKE?

Each woman will experience this protocol in her own way.
With so much confusion in the world of hormones, why discount someone who sought answers for herself and family and then offered it to anyone who might also wish a better life?

Personal issues aside, the bio-physic science is there. Only an oncologist trying to prove the link of hormones and cancer, and the woman working with her discovered truth. In this day and age of smoke and mirrors and deception, I can assure you neither woman wishes you harm................only health.

May 11, 2010 - 1:03pm
(reply to Anonymous)

This goes both ways.

December 25, 2009 - 6:01am
EmpowHER Guest
Anonymous

Also, you have to wonder about some of the testimonials you find online. The people behind the Wiley Protocol have been caught red-handed posting fake testimonials in the past. Now see the following comment on Wiley Watch (http://wileywatch.org/letter_to_senator_smith#comment-873):

"The Patent office was sold to the Pharm companies. The National Institutes of Health who makes 'standard of care' in this country is in partnership with pharmaceutical companies. Congress directly funds NIH and who are they being paid by? The FDA has failed women so badly. GO WILEY!"

This was 12 months ago. Note that it ends with "GO WILEY!" -- just like the comment above from the person who's supposedly been on the protocol for only four months.

July 19, 2009 - 12:19pm
EmpowHER Guest
Anonymous

Here's a recent testimonial:

"I started the Wiley Protocol on May 1st, 2009. I felt great for the first month and the two weeks of the second. Now I am having headaches, insomnia, crying outrageously, and very depressed. None of this was the case... I am not sure but since I left the Protocol off last night and slept and had no headache today, it could be the Protocol. What do you think? The crying has even been better today and I don't believe that the depression is as bad."

This is very common. Initial enthusiasm followed by disaster and despair. Hormones are powerful substances that shouldn't be tinkered with by laypeople like T.S. Wiley.

I don't think the drug companies give a whoop about Wiley. The criticisms result from women who tried this protocol and from Wiley's own actions. Nobody made her lie about her credentials. Nobody made her peddle this protocol without testing it for basic safety. (See http://www.ncbi.nlm.nih.gov/pubmed/18551081.) Nobody is making her attack the women who are getting sick. Etc.

July 19, 2009 - 12:00pm
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