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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

Add a Comment317 Comments

EmpowHER Guest
Anonymous

Another Wiley Protocol salesperson has arrived. They're everywhere like Scientologists.

May 11, 2010 - 1:38pm
EmpowHER Guest
Anonymous (reply to Anonymous)

LOL You are funny. And accurate.

May 30, 2010 - 8:22pm
EmpowHER Guest
Anonymous

I have been a user of the Wiley Protocol since the spring of 2004.
Since I am in my 60's and was surgurically made sterile in my early 30's, my quest for hormone balance resulted in more negative symptoms through the prevailing wisdom of the medical profession.
The final scenario was thyroid cancer, which I attributed to premarin. My discontinuance allowed me to heal myself through complimentary means and to eventually be led to meeting TS Wiley, reading her book, and talking to a local pharmacist who consented to compound this protocol for myself and friends who wanted to try this means of hormone replacement.

Since I had been off any hormone replacement for approximately 10 years, my body felt like it was feeding at the shores of a well spring of life I had not experienced since I was young.
It took a long time for my body to open its receptor sites and remember how to use these hormonal messengers that affect every cell in our bodies. Once it did I began to learn the truth about what our bodies really need to remain viable, strong and healthy.
For we aging boomers, of which TS Wiley is a member, we knew we had to create new in roads to healthy living. We had to expect respect and have courage in our convictions. We had to educate ourselves.

My yearly lab work indicates the view you would expect of a much younger woman. The initial beginning of osterporosis prior to intelligent hormone replacement, now shows lab results that I would have seen 10 years ago. My blood levels on all values are within "acceptable" AMA ranges and the office staff always comments "how are you doing this".

Since I now coordinate a Wiley Protocol User's group in this area of California, I have heard many stories from women in all age groups.
(yes, even 20 year olds can be hormone deficient). For the majority, it is the only answer that has brought them a quality of life that makes life worth living. It is not a solution for everyone, but it certainly is for many.
So, for those on the fence, please know that the research Dr. Taguchi and TS Wiley so wisely presents to you in Sex, Lies and Menopause is your road map to hormone replacement.
Always bear in mind that most docs do not have a clue about hormones. Those that do, have personal opinions.
What matters is what you know, how this life giving endrocrine symphony functions, and how you feel.

This is after all YOUR body and your LIFE. Treat it with the respect and care it deserves, and it will serve you very well.

May 11, 2010 - 12:43pm
EmpowHER Guest
Anonymous

I am a man and i read her book "LIGHTS OUT" I have not been able to control my type 2 diabetes for over 5 years. My blood test showed a blood glucose that averaged 290 it should be about 100. After following her book for 5 months today my blood glucose averages 114. Say what ever you want about Wiley but she saved me from ending up on a dialyses machine. I am off meds for diabetes and high blood pressure. She saved my life. I don't care what school she attended she helped cure me. And thats what matters!

April 22, 2010 - 6:56pm
EmpowHER Guest
Anonymous

Three people I know have gotten gall stones on the Wiley Protocol. Emergency room, then surgery-- a nightmare. The dose of progesterone is way too high. The Wiley "certification" thing is a scam, marketing ploy. Wiley is a college drop out and her assistant is a real estate agent. Any doctor who would be certified by these two needs their head examined. There are plenty of bioidentical doctors around who don't recommend a regimen that's so extreme and requires constant $$$ calls to the doctor.

April 19, 2010 - 2:41pm
EmpowHER Guest
Anonymous (reply to Anonymous)

To anonymous april 19, 2010
Bill Gates was a collage drop out too. Has nothing to do with anything.

March 20, 2012 - 11:55pm

have been on wiley almost 10 months. having pros and cons. thinking i have to stop it. it immediately took away hot flashes, insomnia, weight gain, depression, brain fog, dry skin. i felt normal and looked good. but every few months id get sudden stomach cramp, nausea, urge to poop and barely made it to bathroom where my body was violently and painfully trying to puke and poop at same time. my body had huge strong involuntary urges to puke and poop even when there was nothing more to come out. it was like food poisoning but different and now that it's happened more than once i attribute it to the hormones. i involuntarily groaned and moaned out loud during whole episode (which is not like me) and felt great fear that i needed to go to hospital but was in so much writhing i couldnt even use the phone (and i never go to the hospital, i am really healthy). the bout would last 1-4 hours then be gone. during episode my jaw and teeth wanted to grind and chew. i felt chills and sweat.
it happened twice a few days before period so i thought it was pms but then it happened sooner and sooner in the cycle. and one time about 2 months ago the nausea was precluded by an extreme bout of vertigo when rolling over in bed (crystal drops in inner ear causing complete sensation that you are falling when you are not). i involuntarily yelled out loud in mental pain, and then couldnt stop puking for 4 hours even though there was nothing to puke out. afterwards i was so cold even though it was hot and sunny outside.
ive tried 4 different wiley drs, each one charging exhorbitant amounts of money yet not being detail oriented and each one having different opinion of prescription amounts and procedures even though they are each supposedly "wiley certified". when i email caren abdula (wileys assistant), she gives me different answers as well but she cant be my doctor, prescribe, nor advise my doctors so whats the use of her advise?
anyway after last vomitting episode 2 days ago my body is forcing me to quit wiley. the hot flashes and insomnia started last night so i had to put the cream on again to get to sleep but had stomach pain throughout night and gas this morning so did not put it on this morning but am left in a quandry of what to do.
each dr charges about $75 to talk for 15 minutes and even though ive had blood tests every 3 months they dont cater my prescription exactly to stop any side effects. why?
i feel ive given wiley a good strong try. 10 months is a long time. i was only in peri menopause, am 51. had not lost my periods, only missed one before starting wiley. and only started wiley to stop hot flashes and insomnia which it did. but these other digestive and vertigo side efects outweigh the positive. hopefully i will find another route - herbs, accupuncture, but i hate needles, or move to pristine rural living environment.

April 19, 2010 - 7:12am
(reply to Alex Klein)

Whoa! You've been through HELL and back! Your ordeal sounds AWFUL! Doctor visits do add up when you're trying to find answers. I've never heard of hormones causing terrible stomach pain, vomiting or diarrhea, but of course everyone is different. You have to listen to your body. The gall stones idea sounds interesting enough to follow up, if I were you. There are too many health benefits to using cycling BHRT for you to give it up, such as cancer prevention, healthy skin, teeth, nails as well as the relief from hot flashes, lack of sleep and libido, and hair loss, etc.

I was cycling early and my doctor had not yet gone to get Wiley certified. So, like you, I spoke with Caren (and even TS Wiley, herself). They suggested a few things, which got me right back on track. Though they were a big help, I take full responsibility for my own health and do my own research and listen to my own body. Even when my doctor gives me advise, I tend to do what I believe is the right thing for me, even if it differs.

April 19, 2010 - 8:24am
(reply to Alex Klein)

My monther-in-law had the same symtoms you have and it was her gall bladder. Her small stones never showed up on the tests and she suffered for years being told it was all in her head.

April 19, 2010 - 7:26am

I am 65 and have been on the Wiley Protocol for almost a year. There is a period of time where you and your doctor figure out the perfect dosages, but once that is done you feel like your old self when you were say in your twenties. I never took birth control pills or the commonly used Hormone Replacement Therapy (HRT), so I think my experience is different from some who have residual effects from the patented hormones that are not the same as those your body produces, which is to say NOT bio-identical. I immediately felt really better and only improved over time. I never had horrible menopausal symtoms, but was unaware how unwell I was feeling until I was so much better! It is definitely a pain to have to have a period each month, but T.S Wiley's book makes a convincing case for the need to do it. Her take on it is that if you mimic what the normal body does you will not cause bad side effects or unintentional results. There are an awful lot of companies out there who stand to lose money if this kind of protocol becomes the so-called Standard of Care for women with hormonal imbalances, so I tend to be suspicious of the shrill nay-sayers out there. There is a 20/20 TV show from years ago which set out to discredit the whole Wiley process and is frequently quoted. I would wonder who owns the 20/20 show because that owner would possibly have a financial stake in leaving old standards of care in place. These days we must use common sense and do our own research. That's how I found Wiley among many bio-identical proponents out there. I don't know if Wiley is the final answer to finding the perfect therapies for re-balancing our hormones, but I am one woman who is very thankful for T.S. Wiley and her team. I would say go Wiley, but I see several comments suspicious of even that!

April 17, 2010 - 10:01am
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