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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

Add a Comment317 Comments

(reply to Anonymous)

Anonymous, take your petty unrelated to my health arguments to some other venue please. I have grown utterly weary of you.

September 15, 2010 - 8:05pm
EmpowHER Guest
Anonymous (reply to nanashana)

Nanashana, if fraudulent and unethical behavior are of no concern to you, so be it, but surely you can appreciate why it may be of significance to others.

September 18, 2010 - 3:24pm
EmpowHER Guest
Anonymous (reply to Anonymous)

J Raden, no privacy is violated in medical online discussion groups unless the poster reveals her name. You may have noticed that if you follow any of the hundreds of medical discussion groups. So please, it insults the readers' intelligence here when you tell them not to post their probelems in public to protect THEIR privacy.

When you encourage Wiley patients to only complain privately, it is an obvious way of saying YOU have something to hide. If the Wileys had nothing to hide, they would create a public forum to dialogue openly. You would not direct patients to a real estate saleswoman who gives medical advice.

Also, I find your last sentence in which you describe the Wiley Products as your "mission," very disturbing. This is why ABC News, Newsweek etc., criticized Wiley for her cult leader, missionary-like statements.

September 15, 2010 - 7:07pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Every company in the world has a mission statement, this is a common term used in a business setting. Ours involves getting BHRT hormones to women in safe, effective, clinically studied ways.

This is a public forum where woman can and do discuss Wiley Protocol, as you all are doing now, which is encouraged. Please feel free to discuss whatever you like. For the sake of women everywhere though, I suggest character attacks and personal insults be left out, and discussion of medicine, symptoms, prescribers, etc. be the focus, as that's really what is important. Of course, you may post whatever you like, wherever you like. I never asked women not to complain publicly, I simply asked that if they are interested in helping us fix problems when they arise that they make us aware of them directly as well so we can try and help. We don't have time to scrounge the internet for every single issue mentioned about the Wiley Protocol; sending it to us directly is far more effective.

And to this day, as of Thursday, September 16th, 2010, there have been exactly ZERO lawsuits filed against The Wiley Protocol, or Wiley Systems. Not a single one. We help people get better, we educate, and research. There's no scam, no cult, and no secrets. It's all in her book, laid out for anyone to read and understand if they take the time to do so. That's all there is to it. The rest is training the relevant health care professionals to administer is clinically and compound it purely. Which again, is completely voluntary, there are no exclusivity agreements about what a doctor can and cannot prescribe if trained in Wiley, nor what a compounded can compound if they compound Wiley. They can compound Wiley and 30 other regimens if they like. We don't try to stop anyone from doing that.

These things are matters of public record, feel free to investigate yourselves. There has been mention on the internet (in what we feel to be a muckraking attempt) to misconstrue a residential and private lease lawsuit between my parents and a former landlord as though it was in anyway related to The Wiley Protocol, medicine, malpractice, or anything else relevant to the discussion of BHRT. It was not.

My so called "cult leader" mother is a Huffington Post blogger, and has been invited to testify in front of the Senate (her testimony is in the Congressional Record) on behalf of compounding pharmacists against big pharma's "Safe Compounding Act of 2004", which would have forced women to only take pharmaceutical company synthetics, with little or no choice by them and their doctors on what hormones would be available to them. So you see, we also lobby for the free and fair choice of women to own their own health decisions. So much for being a cult.

We really are trying, no one is perfect, and it's an extremely uphill battle in the healthcare industry. Again, thank you for the support, good luck to you all, and I wish you all wellness. I really mean it this time, I am going to stop commenting here. It's not about secrecy, it's about conflict of interest. I work for Wiley Systems, and TS Wiley is my mother. If you want to discuss issues and therapy on Wiley Protocol, do so yourselves, and invite your physicians to come here and post and discuss as well. But it is a trap to ask us, employees of Wiley Systems, to comment in forums such as these, as no matter what we say it can be turned around and considered "propaganda" whether it's heartfelt and truthful or not. We don't prescribe, we don't compound, your doctors and pharmacists do. We just tell them what we think is best, they are free to give you what they think is best. Signing off...

Best Regards,
J. Raden
Wiley Systems/The Wiley Protocol

September 15, 2010 - 7:42pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Mr. Raden, since you are TS Wiley's son, perhaps you could tell us how many lawsuits have been filed aginst the Wiley Protocol?

September 15, 2010 - 7:10pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I am breaking my promise not to comment.

But, WHOA!

We at the Wiley Protocol NEVER EVER EVER would color our creams. No registered pharmacist should ever do anything of the sort either. The syringes they come in have plungers that are color coded to packaging and hormone type for easy identification but the cream should ABSOLUTELY be white and no other color whatsoever.

Please contact us at the Wiley Protocol if you are in fact receiving or have heard of colored hormone creams. That would absolutely pose potential risks to formulation, uptake, and of course, standardization we are so very concerned about. This is completely unacceptable if it in fact happening, and we would need to discuss such an occurrence with the pharmacy involved.

And by the way, we ask for private communication because there is a law you may have heard about called HIPPA which protects patient privacy. It's also because we respect both our doctors and patients confidential relationships. Nothing on the internet is confidential or private, and therefore not suited for discussion of people's private medical and health information. I apologize for any inconvenience that may cause you in denouncing our mission.

J. Raden
Wiley Systems/The Wiley Protocol

September 15, 2010 - 5:56pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I notice the Wiley Protocol people always want you contact them PRIVATELY with complaints, and avoid any open discussion board. When you do contact them privately you get a California real estate agent.

If the product were so good, the Wiley people should welcome a PUBLIC forum. The protocol has bombed because there are so many complaints, even videos of TS Wiley on Youtube with patients complaining to her that they are suffering. Some even went to the emergency room and had surgery.

Wiley makes claims of "thousands" of satisfied customers. Yet the public record does not bear that out. The Wiley website lists many so-called Wiley Prescribers who long ago stopped prescribing the product because their patients complained so much. In the spirit of ethics and full disclosure those non-existant prescribers should be removed.

September 15, 2010 - 8:07am
EmpowHER Guest
Anonymous

I have been researching bio-identical hormones (including WP) for some time and stumbled across this discussion after my bio-energetic doc recommended the Wiley Protocol. This discussion is the perfect example of why this type of research is so difficult. You can't tell who actually has a valid story to share. Character asassinations of Wiley, et al, and inflammatory comments and crazy stories do not lend anything valuable to anyone. Those are the very comments that I generally discard because they are so lacking in credibility, by their nature. I'm a stay-at-home mom who homeschools my children, has had small businesses from my home over the years, am a retired La Leche League Leader, and have been a literacy tutor and library volunteer, among other things. And yet, friends all over the country call me to ask any holistic health/nutrition related questions they have, because I have a reputation for good research and generally knowing what I'm talking about in that area. I can just see how someone who didn't agree with something I say could use that background to discredit me and say I have no "education". Frankly, I value the opinions of others who have the same type of "education" I do, which involves over 25 years of concerted study and personal experience on the subject, more than someone with a 4-year college degree from textbooks which are, at best, a full decade behind the best current information. I think many of the people who badmouth Wiley on that basis would be unwilling to have themselves characterized by similar criteria.

Every doctor and patient who chooses to use WP has to do their own research and make their own decision. Wiley does not do the diagnosing.

I see a flaw in the idea that there is a particular hormone level that is right for everyone. And I can see how the tweaking process would be more difficult for people whose bodies need a more individualized dosage.

The main reason I am considering WP is because my doctor has worked with me for a year, to my great benefit, and he is so diligent in his research and thinking process. He's always working to improve his protocols. He hasn't been wrong yet, and I'm a VERY tough customer. I guess I also feel better knowing that he has the benefit of using bio-energetic testing to determine exactly what my body needs. When I first went to him and he prescribed me 2 grains of thyroid right off the bat, my friend was horrified that he didn't start out slower. But he had been able to determine EXACTLY how much my body wanted -- and he was RIGHT. I never had a single negative side-affect/outcome. He has had his wife on WP for a year and she is doing really well. He continues to tweak here and there, just like I know he will with me.

What I would love to do is speak with someone who started WP before menopause. I'm only 44 and perimenopausal at best. But my hormones have been out of whack my whole life and he feels that this would be the final thing to help me finally feel GREAT. It's totally a quality of life issue, and after spending the first half of my life feeling like garbage, I think I'm up for feeling great for the rest of it. Most stories I've read are women who were already in menopause. I'd like to know if it's harder or easier to adjust if your body is still making hormones and you're just working to perfect the balance.

I've been taking bio-i progesterone for a year, with great success. I still have a few things that my doc feels would resolve if I had a little estrogen to balance, create the "peak" and prepare the receptors for the progesterone to work better.

But can I find information like that? NO! Because all the information sites are filled up with people fighting and slinging mud and you can't separate the muck from the truth. Why does it have to be ugly?? I see a lot of people getting angry that other people don't just take their word for their position. Just because a Wiley Watch representative says something doesn't make it true. Just because the Wiley website says something doesn't make it total fact we don't have to look into further, either.

Thank you to the few ladies who have been very gracious and forthcoming with their personal experiences. Hopefully a few more will come along and comment and not be scared away by the ugly tone. Wouldn't it be great if this could be the one place where women could support each other to get ALL the facts, from ALL sides and make the best informed decision possible, without fear of being swayed by false information and scary smear campaigns? Let's do THAT.

-Moyne

August 18, 2010 - 6:28pm
(reply to Anonymous)

Hello Moyne
I am wondering if you have had in succuess gathering good information on WP? I am entering my 3rd month on the protocol, I have don't have any mafor side affects but I am now concerned by reading all this negative reactions. WP may not be for everyone there is no magic cure, but I believe there is something out there that is good for womens health.
Renee

September 13, 2011 - 9:58am
(reply to Lawgozrave)

Well, I've been using the WP for just a couple months shy of a year, with no problems. Have you read the book? I think the main thing I really had to do was to read the whole book, so I knew everything behind the philosophy, talk to my doctor more, and then just get centered and grounded and pray for guidance to make the right decision.

I really didn't find any great outside resource with good, unbiased info. I did find a few people here and there on different forums who were successful and had nothing really to report. My body seems to be liking it and continuing to make progress with getting balanced. HTH!

September 13, 2011 - 10:21am
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