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Have you had experience with the Wiley Protocol?

By March 3, 2009 - 11:15am
 
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Has anyone had experience using the Wiley Protocol of hormone replacement therapy?

It is a method where bioidentical hormones are prescribed and are given transdermally -- through the skin -- in a patent-pending cream. A primary

difference between this protocol and some others is that the hormonal levels rise and fall, similar to the way a woman's normal cycle did when she was still menstruating.

There is some controversy on the web about T.S. Wiley's qualifications for developing a medical protocol, since she is not a doctor herself, she studied anthropology (though she co-authored the book "Sex, Lies, and Menopause" with Julie Taguchi, M.D.)

Some women claim wonderful results; others claim very troubling side effects. Does anyone out there have personal experiences to share?

Add a Comment317 Comments

EmpowHER Guest
Anonymous

Where is the record of adverse effects from the Wiley Protocol recorded and documented? A lot of us would like to see it.

Was the Wiley protocol ever tested on animals or people before being promoted?

February 16, 2011 - 7:27pm
EmpowHER Guest
Anonymous

Why do women lose so much hair and gain weight on the Wiley protocol?

February 16, 2011 - 5:06pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I have only positive experience with WP- for over 3 years now (full protocol.) But I was very healthy to start with (I do the protocol as an anti aging therapy, because I consider menopause the beginning of the end), I took care of my adrenal deficiency first- for a few years, and started very slowly, with only very small doses (only P and T first) for a few years, replacing only what was lacking, before going on the full protocol. I was nowhere close to menopause when I started, and I assume, by being proactive, I kept all my receptors, which is likely the reason the hormones don't just circulate in my blood unattached, causing toxic symptoms.

June 22, 2014 - 10:00am
EmpowHER Guest
Anonymous (reply to Anonymous)

Regarding the question of hair loss and weight gain:

There's a number of reasons women could experience these symptoms, but they certainly are not universal to everyone who goes on therapy. I will tell you that, ceteris parabis lifestyle habits pre- and post-WP, it's most likely too low estrogen. Either the physician has cut the dose, the pharmacy is making it improperly, or the patient would need to be on +1, +2, or +3 (standardized dose increases). Or, if the patient experienced these things and did not stay on the therapy completely for at least 3 months, they simply may not have been receiving the estrogen, as it takes up to three months for your body to respond fully to the increased circulating estrogen and progesterone and create adequate hormone receptors at a cellular level. Of course, there could be latent thyroid and adrenal issues too that could require attention. You question is very general and lacking a lot of supporting information for an adequate diagnosis. So my answer can only be as specific as your question. Serum hormone levels would be crucial in this sort of situation to understand what was happening.

One reason you may have heard of this being a common side effect is because many doctors are still scared of estrogen, and so erroneously cut the dose down. These symptoms tend to be a direct result of that. Or, women get impatient in the first 3 months and quit before their bodies have adjusted to the medication.

This is based on our observation of patients taking the Wiley Protocol, in general. This is not a substitute for medical advice, nor is it targeted to you personally. Your doctor of course is the only person you should be taking specific medical advice from. I simply wanted to answer your question to the best of my knowledge and ability given my experience working for Wiley Systems. There are far more qualified people we work with (doctors and nurses) who could give you specific advice. We'd be happy to help you contact one if you desire.

This is I'm afraid getting into risky territory where I'm being asked to give advice and answers to questions that are much better addressed by your physician. We believe very strongly in empowering the patients at Wiley Systems, but unfortunately in the past that has been very misconstrued by certain groups and used against us, especially on the internet. I'm not looking to revisit those incidents, and for that reason I'm skirting a fine line between being open and honest, and being vulnerable to claims of prescribing over the internet, not being a doctor, and gosh knows what else people can come up with.

As I've said before, personal claims of adverse events reported to us are recorded, reviewed by doctors, and generally we can offer feedback on that process to a patient who requests it. Changes and modifications are always left up your doctor, ultimately.

Jake Raden,
Wiley Systems, Inc.

February 16, 2011 - 6:17pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Jake, is there a site where woman on WP can talk about things to help us adjust on the program. I don’t want to hear from the people complaining but want to make this better. I have been on bio identical hormones for over 10 years and started Wiley pretty shortly after starting. It’s work keeping it balanced but I would never go without. I am interested in productive conversation.
Thanks Diane

September 20, 2018 - 10:00am
EmpowHER Guest
Anonymous (reply to Anonymous)

I haven't done either of those things. Those things happened to me BEFORE I started the protocol, which is part of my reason for trying it.

(And I'm sorry I keep forgetting to sign my name, but I wasn't slamming Wiley for not being a good advertisement for her protocol, just trying to point out how I realized I shouldn't judge the efficacy of the protocol by her physical appearance, since hormone replacement does not exist in a vacuum. I was replying to the person slamming WP and Wiley herself.)

-Moyne

February 16, 2011 - 5:56pm

Hi Jake, thanks for that info! It did sound too good to be true when she mentioned it. She IS Wiley certified, but I am her very first patient. I was the one who pushed her to look into it in the first place. Now, she has a lot of patients on it. I just thought she was more informed than I am. Oh well. I love this protocol. I believe it has saved my life and will continue to do so. In fact, it has given me NEW life. There are not enough words or action that can truly express how grateful I am for this protocol.

February 16, 2011 - 4:24pm
(reply to nanashana)

Hi nanashanna,
I have been on the Wiley Protocol since fall of 2007, have never had anyone to talk to about it, are you still on it? Would love to e-mail you if you don't mind. My husband has also been on it. It has been a lonely learning experience, as the doctors I have dealt with don't know much, so no one to share with, lol, all I know is that when our numbers are good, my husband's testosterone around 800, & my estrogen between 300 & 500, progesterone between 10 & 22, life is good! Thanks for your time.....

E.V.T.

December 2, 2013 - 8:53am
EmpowHER Guest
Anonymous

When I was researching and deciding whether or not to try the WP, I was put off by the fact that those producing and promoting it (other than Suzanne Somers) do not look like a picture of health nor a good advertisement for the product. I asked my doc if that's just because while hormones are a BIG thing, they're not the ONLY thing, and many other factors are involved in good health. He said that is exactly the case and it was supported by one of the WP seminars/trainings he attended where a participating doctor was engaging the presenter in a discussion of his patient's migraines and they were trying to figure out how to tweak the hormones. My doc was sitting in the back with several other bio-energetic docs shaking their heads and chuckling because there are SO many other factors and hormones should not have been the
that discussion and it wasn't really apropos to the presentation. Suzanne Somers, on the other hand, immerses herself in healthy eating, exercise, toxin removal, appropriate nutritional supps, ETC., looks fabulous and you can tell she feels fabulous, too, that she's a much better advertisement for the protocol.

February 16, 2011 - 4:17pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Anonymous, in response to you statement about spokespeople:

I'm sorry, but where has it ever been written or insisted that the Wiley Protocol is a replacement for healthy eating, physical activity, good sleep habits, and a cure all for genetic propensity for weight gain?

Nowhere. In fact, there's a whole other body of research we are solidly behind revolving around sleep. We think it's just as important as hormones. And unfortunately for some of us who are very busy here at Wiley Systems, it's not something we always get as much of as we would like.

Wiley Protocol is a replacement for hormones. There are young, unhealthy people all over. In fact, in the US, we're surrounded by them, more than half of our population is clinically obese. Their hormones are just fine, it's all of there other health choices that are wrong.

If a doctor is overweight, should someone take their license away? What if they have high cholesterol? Aging, as well as certain lifestyle habits, happen. Judging a hormone replacement system on something as complicated as physical appearance in 2 people is, I'm sorry to say, a poor way to make a good informed decision. And actually, if you've ever seen the clinical guidelines given to all doctors who are trained by us, you'll see there are a large number on non-hormonal adjustments for symptoms while on the Wiley Protocol. This is especially true of migraines. Feel free to ask your Dr. for a look at the Clinical Guidelines Manual. From caffeine intake, sleep adjustment, and a number of other things, there are lots of alternatives we recognize and suggest before a modification to the hormone dosing is suggested. But for what it's worth, the vast majority of migraines happen at specific times in a cycle, or after menopause when hormones fall off. We didn't cause that to happen, nature did. Very few women find relief from migraines on anything but correct hormone adjustment in our experience. If you have something better, by all means, please share.

I'm not familiar with bio-energetics or doctors that practice it, so I can't comment too much more on that. I do know that migraines are a hallmark symptom of low estrogen. We've seen it, and addressed it, with thousands of women at this point.

However, all that being said, please don't mistake the Wiley Protocol as billing itself as some sort of panacea to cure all ills and allow you to live as frivolously as you like with regards to your health. As you've correctly identified, health is multi-dimensional and hormones are one part of that. I'm sorry if your physician gave you a different impression of what we teach and what we stand for. Hopefully this helps to set the record straight.

Jake Raden
Wiley Systems, Inc.

February 16, 2011 - 4:57pm
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