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Can you use Clobetasol Propionate cream on your vagina?

By Anonymous December 19, 2008 - 5:07pm
 
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Anonymous

I'm a 27 year old female who's been dealing with the issue of mostly painful intercourse for the past 2 years, More so in the sense that certain positions will make it feel like something is tearing just below the vaginal opening. Some positions are minimal with the pain. After sex with my boyfriend the area just below the opening will be red, irritated, and have slight bumps, and sometimes(depending on the position) walking will be a pain for a few hours. After countless doctor visits I finally saw an OBGYN and she took a look and said I had Lechin Schlerosus...which I'm pretty sure that's what she says, I only remember it starting with an 'L'. She prescribed me with Clobetasol 0.5 2xs a day for 2 months for treatment and also Nortriptyline 25mg for nerve pain. Two months go by and the pain definitely subsided from sex and some positions were easier again. Went back for a visit and she wanted me to use it 2xs a day on some days and 3xs on other days until further notice. I felt that might be a bit excessive so I've just been using it here and there as needed. I also stopped the Nortriptyline as it caused dry mouth. I really didn't see the need for it to be honest. I'm getting ready for my follow up but of course my work changed insurance companies and my current doc doens't take my insurance so now I'm going to see another doctor. Irritating but I guess a relief as now I can get a second opinion as I don't like the idea of using Clobetasol on the outside of my vagina with the fear of it thinning my skin down there...I mean, wouldn't long term use be dangerous? I also fear of how having a baby would be if the skin is thin down there from using the cream. I see alot of people on here talking about using the cream 2xs a day for 2 weeks or 2 months then using it either once a day or every other day, or even as needed. I just know know what I should do. I also have to bring up that a dermatologist wasn't too thrilled to find out I was using this steroid cream on my vaginal opening for so long and wants me to use Elidel but heard it's not FDA approved and with the people it was tested on that some got skin cancer, so that doesn't sound like a good option either. I guess I just want to hear what other people are doing and I'm hoping I'll have a better insight with this new doctor I'm seeing at that revolves around women health and such.

June 6, 2015 - 12:24pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I was wondering how your treatment went and how you're doing now with the problem you described. I'm having the same problem with painful sex. The same area at the bottom of the vaginal opening starts to tear a bit toward the anus direction and my vaginal opening swells up and gets red no matter how slowly and gently my husband and I try to do it. My GYN prescribed the Clobetasol cream .05% twice a day for 10 days, but I've been afraid to try it because of the skin-thinning warning.

April 29, 2017 - 7:36am
EmpowHER Guest
Anonymous (reply to Anonymous)

I have been diagnosed with LS since 2002 (40) and using the .5 cream for years then was recommended to use the 1 in 2014 which for me drastically changed and accellorated the other complications that are part of LS. My entire labia minora has been absorbed and the upper flaps of the labia magora are starting to dissipate. I did not fully understand in my diagnosis that eventually the vigina would be absorbed by the body. It's not just the skin change it is a structural change. I think anyone that is diagnosed with this needs to seek out a support group and get as much help as they can give you. Because beyond the creams there doesn't seem to be much more help the medical practise has. As I understand it is a autoimmune condition, is a gene within the family , , not contagious, command patient history traumatic experience during childhood, quite often excessive skin production on other areas of body. You need to live as healthy and positive life you can to slow it down . All the best to everyone including males who also can develop this.

March 9, 2017 - 9:54am
EmpowHER Guest
Anonymous (reply to Anonymous)

How long from diagnosis to the disappearance of skin as you described? And how old are you. I’m 52 and just got this diagnosis

November 16, 2017 - 1:35pm
EmpowHER Guest
Anonymous (reply to Anonymous)

Did you get any responses to your question, or comments? I have a similar situation, and am to use it to calm down squamous cell attempted reoccurance

January 24, 2016 - 8:48pm
EmpowHER Guest
Anonymous

I have Lichen Sclerosus. I was diagnosed a couple of years ago but believe I had it for a long time, although just a mild case until two years ago when it got really bad. I had gone to several doctors before getting the diagnosis and put on medications. It took a long time, about 4 months, to finally get some relief. I was able to find a terrific LS support group - it has tons of helpful women and tons of great information. It is on facebook "Lichen Sclerosis / Sclerosus - LS". There are two groups very similarly titled but this is the one I really found helpful....(with the forward slash in the name). https://www.facebook.com/groups/48537746157/

May 8, 2015 - 5:22am
EmpowHER Guest
Anonymous

I have some rare skin problem on the outer are of the vagina my doctors were all pretty stumped. They were ready to send me to of of m collage to see if I could get the terrible pain to go away,I'm 46 and my body is changing

April 25, 2015 - 10:31pm
EmpowHER Guest
Anonymous

Hi ...45 yrs..i have LS as well...and is using Taro-clobetasol oint0.05, however am unsure about using it as often as Dr. prescribed...as it does thin the skin...i have read all the comments here...some say thicken some say thin...i believe it thins as it is a steroid...therefore i am afraid to make matter worse :( i have used it several times...but def. don't use it twice a day for two weeks...it's been almost a year...sometimes it helps sometimes it makes it worse...it's always a battle to make the decision to use it or not! As i have read here and have been told many times no one knows the cause...but i am wondering if it has to do with hormonal changes...they say there is no cure but i believe if we find the cause we can cure! :) it is extremely difficult to live with this disease or disorder...as you all know...i have lost my relationship over this! i need to find a cure...i am wondering if any of the people on here with LS have had any trouble with vaginal glands? as just before my symptoms began i had a blocked gland that required surgery also, have anyone here with LS have an IUD for birth control...as i just had one inserted a few months before my symptoms began as well...would love to know your feedback...

March 18, 2015 - 8:26pm
EmpowHER Guest
Anonymous (reply to Anonymous)

I had an IUD ..was 34 yrs old...one day it decided to leave my body!
I almost bleed to death. Sat on the toilet bowl and out came the IUD.
After that my periods were very heavy and full of clots.
About a year went by,I couldn't take it anymore. Went to the Dr. ,and he gave me a hysterectomy... I should have sued the planned parenthood Dr. that did a horrible job on me...
Hope you do better!

October 28, 2015 - 5:46am
EmpowHER Guest
Anonymous (reply to Anonymous)

I
I have lost my bf of 8 yrs and other guys seem to run when they learn of my LS.... I can't have intercourse cause of painful irritation.. My walls inside are paper thin n my vagina outyer lips after using this ointmeny one time has made it soo swollen... It scares me that because my non existance of sex guys run off.... Wondering if this ointment is causing more issues that its helping... I got l.s at age 27... Due to a hysterectomy in 2004.... Hope urs gets better.zc

August 11, 2015 - 8:08am
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