Well, I can certainly use the word suffer when it comes to my RLS.I have had it since I was a teenager. My sisters and my nieces all have it, which means my RLS is Primary. secondary RLS is, for example, when pregnancy brings on the RLS, or ay other pyysical condition that can bring on RLS. I own and moderate 2 support groups for RLS, and I can definitely say they saved my life. i take meds for it, and lois of them. What burns me is whn people think we are making it up, or it is all in our heads! Well, it is a neurological disorder,so it is in our heads, so to speak.yes, progress is slow with research.
Read, read, read. go to the RLS Rebel's web site http://www.rlsrebel.com She has lots of ideas a nd "tricks" on what to do besides meds. However is you are still being treated with carbidopa, you should get off of it. It is obviously not helping you.
Support groups are the best way of getting patient information out there. You also do not feel quite so alone when you read about each other's nightmares with RLS.
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Well, I can certainly use the word suffer when it comes to my RLS.I have had it since I was a teenager. My sisters and my nieces all have it, which means my RLS is Primary. secondary RLS is, for example, when pregnancy brings on the RLS, or ay other pyysical condition that can bring on RLS. I own and moderate 2 support groups for RLS, and I can definitely say they saved my life. i take meds for it, and lois of them. What burns me is whn people think we are making it up, or it is all in our heads! Well, it is a neurological disorder,so it is in our heads, so to speak.yes, progress is slow with research.
October 11, 2008 - 2:07pmRead, read, read. go to the RLS Rebel's web site
http://www.rlsrebel.com She has lots of ideas a nd "tricks" on what to do besides meds. However is you are still being treated with carbidopa, you should get off of it. It is obviously not helping you.
Support groups are the best way of getting patient information out there. You also do not feel quite so alone when you read about each other's nightmares with RLS.
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