I can't tell you how much it means to me to just give it a name. I have suffered from adhesions for 17 years and undergone about 10 operations including a hysterectomy. I have just turned 41. My last operation was 5 years ago as the adhesions had caused my bowel to hernia through into my tummy cavity. I was told that any further surgery would be too dangerous. I have just had a spinal cord stimulator fitted to help with the chronic pain and although it has helped I still have days, like today when in agony and can't go out with my family to watch my kids play rugby. I am so depressed just now and the overwhelming feeling of guilt is making everything worse. I am a bad mum, a useless wife, a rubbish daughter, and am just so miserable. I am off work sick and know I have to go back as we can't afford for me not to work, but my employer and colleagues have had enough as have been off sick more in last 5 years than have been at work and can't concentrate and make so many mistakes that am convinced I am worthless. Started therapy last week and just hoping that can help me deal with the emotional aspect of this horribly silent condition. However, like I said at the start of my message, just me being able to say I have Adhesion Related Disorder at least gives me hope that someone will take this seriously and might even Google it and read about what it's actually like and maybe begin to understand the immense paid adhesions can cause. Thank you for reading this and I hope that if nothing else, this gives you some comfort that you are not alone
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I can't tell you how much it means to me to just give it a name. I have suffered from adhesions for 17 years and undergone about 10 operations including a hysterectomy. I have just turned 41. My last operation was 5 years ago as the adhesions had caused my bowel to hernia through into my tummy cavity. I was told that any further surgery would be too dangerous. I have just had a spinal cord stimulator fitted to help with the chronic pain and although it has helped I still have days, like today when in agony and can't go out with my family to watch my kids play rugby. I am so depressed just now and the overwhelming feeling of guilt is making everything worse. I am a bad mum, a useless wife, a rubbish daughter, and am just so miserable. I am off work sick and know I have to go back as we can't afford for me not to work, but my employer and colleagues have had enough as have been off sick more in last 5 years than have been at work and can't concentrate and make so many mistakes that am convinced I am worthless. Started therapy last week and just hoping that can help me deal with the emotional aspect of this horribly silent condition. However, like I said at the start of my message, just me being able to say I have Adhesion Related Disorder at least gives me hope that someone will take this seriously and might even Google it and read about what it's actually like and maybe begin to understand the immense paid adhesions can cause. Thank you for reading this and I hope that if nothing else, this gives you some comfort that you are not alone
April 26, 2015 - 4:07amThis Comment
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