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Hello Anonymous,
I can hear your pain and frustration in your words. I troubles me to hear that your physician offers no further suggestions and that you would rather die than live your life as it now is.

You mention that you cannot tolerate any of the formulas. This intolerance needs to be addressed by your physician. The hospital dietitian and pharmacist should have designed a formula that you could tolerate before you were discharged from the hospital.

I am concerned about the pain that you are experiencing with the jejunostomy tube. Has your physician examined the site and determined that there wasn't an infection.

I understand that you are covered by county provided insurance, but, the care that you are receiving is unacceptable. Would you consider going to the emergency room of your local hospital to have a member of the staff examine the J-tube site?


June 4, 2012 - 4:51pm


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