I'm sorry to hear about your relapse. I hope you come back up and out once again.
It is very true that what will work for one may not help another. I have been fortunate to have been able to find things that make a big difference for me.
Conventional medicine never helped me one whit. Naturopathy has been the saving of me.
I have to keep an eye on how I'm doing, all the time. I know another relapse could happen to me, as has happened to you, so I try to be careful.
Mind you, careful is much different now for me than it was a few years ago. I have gradually gone from being unable to work, to an 8 hour week, which over the last 2 yrs or so has increased to about 50 hrs a week.
The fact that I can do it at home taking breaks when I need them, makes all the difference in the world, and the fact that it was a gradual increase over 2 yrs was also, I'm sure, a big factor. I would not have been able to walk into such a work-day all at once without a crash.
I'd like to stay involved with CFS. I plan to do so. The questions, and the irony, do rise up from time to time though. Now that I am well enough to be heard, will people believe that I was ever really that sick?
I can't imagine ever walking away from the people who are still enduring what I endured for those years. I can't imagine not doing whatever I can to bring some relief.
At this point, what I can do is quite limited. I write here about CFS a couple of times a month and beyond that right now providing for my family takes all my time. At some point I hope to be able to do more for other chronics, try to help bring a voice to people who feel they've lost their voice long ago. I'll do what I can.
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I'm sorry to hear about your relapse. I hope you come back up and out once again.
It is very true that what will work for one may not help another. I have been fortunate to have been able to find things that make a big difference for me.
Conventional medicine never helped me one whit. Naturopathy has been the saving of me.
I have to keep an eye on how I'm doing, all the time. I know another relapse could happen to me, as has happened to you, so I try to be careful.
Mind you, careful is much different now for me than it was a few years ago. I have gradually gone from being unable to work, to an 8 hour week, which over the last 2 yrs or so has increased to about 50 hrs a week.
The fact that I can do it at home taking breaks when I need them, makes all the difference in the world, and the fact that it was a gradual increase over 2 yrs was also, I'm sure, a big factor. I would not have been able to walk into such a work-day all at once without a crash.
I'd like to stay involved with CFS. I plan to do so. The questions, and the irony, do rise up from time to time though. Now that I am well enough to be heard, will people believe that I was ever really that sick?
I can't imagine ever walking away from the people who are still enduring what I endured for those years. I can't imagine not doing whatever I can to bring some relief.
At this point, what I can do is quite limited. I write here about CFS a couple of times a month and beyond that right now providing for my family takes all my time. At some point I hope to be able to do more for other chronics, try to help bring a voice to people who feel they've lost their voice long ago. I'll do what I can.
December 27, 2011 - 12:54pmThis Comment
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