I have the same issue. My PCP will not give up, bless him. I have noticed that it is when I have been sitting for some time and about 10 seconds after I stand it happens. It lasts about 30-45 seconds. The feeling that I get is like I am being strangled, I hear my heartbeat loud in my ears and my eyes feel as though they are going to pop out. I feel like my head is going to pop off. This has been happening since I was 16 or so. I am not 34. About 10 years ago my pcp checked my carotids and they were fine. I had an MRI and no MS. I had 1 blinding migraine when I was pregnant 13 years ago. None since then until last night when I had 3 in a row. It has gotten much worse in the last year. I have several episodes per day. I have seen the best cardiologist in town, who is also a friend, stress echo- negative, tilt table-negative, CT angiogram-negative. This is all good to know. I don't have an AV malformation, aneurysm or other vascular problem in pumping blood to my brain. At the beginning of the month I lost my eyesight in my right eye. My retina was pulling inwards, I had Vitreo-macular Traction Syndrome. Rare in young people. NO reason for this. My vision is slowly returning until the blinding headaches last night. My normal retinal specialist and I talk to a new guy. I explained to him that this blinding migraine happened after I had been sitting and I went to lay down on my stomach. I had the strongest strangled sensation I have ever had and thought I was going to pass out, immediately after it subsided I could not see. I asked him to listen to my story, which he did patiently. I told him that I am not stressed, paranoid, seeking or a hypochondriac. I am a nurse of 14 years in a Level 1 trauma unit. I am aware of things that I should be worried about. He stated that he is going to do more testing on my at the beginning of this week and send me to a vascular neurologist because he states that the CT angiogram is good but it will not show the venous return of the saggital sinus. This is the venous side of circulation which makes sense if I have a blockage and when I stand, the blood flow increases to meet the oxygen demand of my brain but can't get back out of my brain due to blockage or insufficiency. So I will have a MRV which is a MRI with venogram to check the flow out of my brain. This would explain the pressure behind my eyes and why I can literally see the world bounce with my heart beat in my vision when this happens. I have read more about this including people that suffer from this issue and the majority of them have been looking for help for a long time hearing it was stress, hormones, muscles, thyroid, etc. Just a thought for some of you still searching for answers. IT is not a great diagnosis but it can be treated. I don't know if I have it but my medical brain feels that this is the most plausible explanation. Warmest wishes.
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I have the same issue. My PCP will not give up, bless him. I have noticed that it is when I have been sitting for some time and about 10 seconds after I stand it happens. It lasts about 30-45 seconds. The feeling that I get is like I am being strangled, I hear my heartbeat loud in my ears and my eyes feel as though they are going to pop out. I feel like my head is going to pop off. This has been happening since I was 16 or so. I am not 34. About 10 years ago my pcp checked my carotids and they were fine. I had an MRI and no MS. I had 1 blinding migraine when I was pregnant 13 years ago. None since then until last night when I had 3 in a row. It has gotten much worse in the last year. I have several episodes per day. I have seen the best cardiologist in town, who is also a friend, stress echo- negative, tilt table-negative, CT angiogram-negative. This is all good to know. I don't have an AV malformation, aneurysm or other vascular problem in pumping blood to my brain. At the beginning of the month I lost my eyesight in my right eye. My retina was pulling inwards, I had Vitreo-macular Traction Syndrome. Rare in young people. NO reason for this. My vision is slowly returning until the blinding headaches last night. My normal retinal specialist and I talk to a new guy. I explained to him that this blinding migraine happened after I had been sitting and I went to lay down on my stomach. I had the strongest strangled sensation I have ever had and thought I was going to pass out, immediately after it subsided I could not see. I asked him to listen to my story, which he did patiently. I told him that I am not stressed, paranoid, seeking or a hypochondriac. I am a nurse of 14 years in a Level 1 trauma unit. I am aware of things that I should be worried about. He stated that he is going to do more testing on my at the beginning of this week and send me to a vascular neurologist because he states that the CT angiogram is good but it will not show the venous return of the saggital sinus. This is the venous side of circulation which makes sense if I have a blockage and when I stand, the blood flow increases to meet the oxygen demand of my brain but can't get back out of my brain due to blockage or insufficiency. So I will have a MRV which is a MRI with venogram to check the flow out of my brain. This would explain the pressure behind my eyes and why I can literally see the world bounce with my heart beat in my vision when this happens. I have read more about this including people that suffer from this issue and the majority of them have been looking for help for a long time hearing it was stress, hormones, muscles, thyroid, etc. Just a thought for some of you still searching for answers. IT is not a great diagnosis but it can be treated. I don't know if I have it but my medical brain feels that this is the most plausible explanation. Warmest wishes.
April 30, 2016 - 12:11pmThis Comment
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