We communicated earlier in the week. I had no idea what an ordeal your son and your entire family have endured. Every piece of advice which you have shared is priceless. Words seem so empty, but I sincerely will keep your son and you in my thoughts and prayers. Though there is no cure for this debilitating condition, I pray for your strength and the miracle that your son will outgrow this sooner than 10 years. No child should have to suffer so much and lose his childhood as you little one has.