I have MG also. I am thinking that another neurologist should be considered for a 2nd opinion. Having been hospitalized in ICU too often in MG crisis, I know that very few neurologists or any doctor for that matter is fully aware of MG, especially if you live in a small community. I attend the annual conferences and bring home information to my neurologist - we are on a learning curve together. You can try myasthenia.org or even a teaching/research hospital that specializes in MG. I have a fear that too many doctors are quick to refer us women to psychiatrists for conditions that need specialized treatment. (My mother had severe back issues and was told it was in her head by her PCP, until she was taken to the ER by ambulance and treated by a doctor with knowledge.) Good luck & God bless.
Comment Reply
I have MG also. I am thinking that another neurologist should be considered for a 2nd opinion. Having been hospitalized in ICU too often in MG crisis, I know that very few neurologists or any doctor for that matter is fully aware of MG, especially if you live in a small community. I attend the annual conferences and bring home information to my neurologist - we are on a learning curve together. You can try myasthenia.org or even a teaching/research hospital that specializes in MG. I have a fear that too many doctors are quick to refer us women to psychiatrists for conditions that need specialized treatment. (My mother had severe back issues and was told it was in her head by her PCP, until she was taken to the ER by ambulance and treated by a doctor with knowledge.) Good luck & God bless.
October 27, 2011 - 11:11amThis Comment
Reply