Joanna,
Thank you for writing about Trigeminal Neuralgia (TN) and bringing the awareness out. I do not think that you have a complete grasp of the life of a person who suffers from TN.
I have had TN for 8.5 years. Many meds, 4 MVD's, DREZ and other alternative treatments. At the risk of sounding like I need counseling, you make it sound like the pain is in our mind. I am 21, so I have dealt with the pain for years. It does make you down, frustrated, helpless, angry etc, but I for one do not appreciate when people tell me to go see a psychologist. It is NOT IN OUR MIND. THIS IS CALLED THE SUICIDE DISEASE, BECAUSE THE PAIN IS SO UNBEARABLE. There have been times where I am flailing all over the bed, or the pain makes me drop to my knees. Going to a psychologist will NOT make this pain go away. And the psychologists, just like many other people DO NOT UNDERSTAND.
You have offended me and many other people who are in pain. Every aspect of our life has to change. I have had TN since I was 13, so I have NEVER been able to experience a "normal life." Going to a psychologist is not going to give me my high school years back, nor is it going to make me graduate college faster. It is just going to make me angry that yet again, someone just wants to boo hoo me and take my money.
Some of your medical suggestions were valid. Other information was not. Where did you get the suggestion of counseling? Let's look at it differently. Do you get migraines? Multiply that by 10 and then try and drive, eat, talk, shower, go outside, go to work, and enjoy life. Not so easy. Is a psychologist going to make your migraine any better? I think not!
Please be more considerate next time you plan to write about the suicide disease- did you know it was called that too?
I pray each day that this terrible pain with just let me be, or that someone will have an answer. But you can not understand that unless you have the pain. So please, next time, think about your audience.
Comment Reply
Joanna,
Thank you for writing about Trigeminal Neuralgia (TN) and bringing the awareness out. I do not think that you have a complete grasp of the life of a person who suffers from TN.
I have had TN for 8.5 years. Many meds, 4 MVD's, DREZ and other alternative treatments. At the risk of sounding like I need counseling, you make it sound like the pain is in our mind. I am 21, so I have dealt with the pain for years. It does make you down, frustrated, helpless, angry etc, but I for one do not appreciate when people tell me to go see a psychologist. It is NOT IN OUR MIND. THIS IS CALLED THE SUICIDE DISEASE, BECAUSE THE PAIN IS SO UNBEARABLE. There have been times where I am flailing all over the bed, or the pain makes me drop to my knees. Going to a psychologist will NOT make this pain go away. And the psychologists, just like many other people DO NOT UNDERSTAND.
You have offended me and many other people who are in pain. Every aspect of our life has to change. I have had TN since I was 13, so I have NEVER been able to experience a "normal life." Going to a psychologist is not going to give me my high school years back, nor is it going to make me graduate college faster. It is just going to make me angry that yet again, someone just wants to boo hoo me and take my money.
Some of your medical suggestions were valid. Other information was not. Where did you get the suggestion of counseling? Let's look at it differently. Do you get migraines? Multiply that by 10 and then try and drive, eat, talk, shower, go outside, go to work, and enjoy life. Not so easy. Is a psychologist going to make your migraine any better? I think not!
Please be more considerate next time you plan to write about the suicide disease- did you know it was called that too?
I pray each day that this terrible pain with just let me be, or that someone will have an answer. But you can not understand that unless you have the pain. So please, next time, think about your audience.
March 21, 2011 - 5:27pmThis Comment
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