Hi, I don't know if this is relevant to your situation, but I am 16 years old and was diagnosed with conversion disorder in early February of 2014. It took nearly two years to get a somewhat firm diagnosis of what I actually have, but after my older sister who is now 19 was diagnosed and I showed the same symptoms to the tee, the doctors just decided to give me the same diagnosis. The symptoms that the both of us showed were muscle seizures(originally misdiagnosed as dystonia), paralysis of the hands and feet, and massive headaches. Along with CD, the two of us both have a hereditary benign hypermobility joint disorder(Elers Danlos type3), as well as a pain amplification disorder which is pretty self explanatory, and I have sensory disorder. Both of our diagnoses took a very long time to be administered because we went to doctors who either did not understand what was going on due to the rare knowledge of this disorder, or in most cases, they simply didn't believe there was anything wrong with us, claiming that we were two completely normal teenage girls. This went on for nearly five years with my sister and two with me until wee finally found doctors who would listen and knew what was going on at children's medical center. After months of counseling for both of us, we learned to control our stress levels and pain levels, making it less likely for the symptoms to flare up again. In the past 20 months, I have had to use a wheelchair twice (8 months in total) and spent almost six months without use of my hands. It is now November and I lost use of my left hand for a third time last night. Praying to get better and using all skills I have at my disposal.
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Hi, I don't know if this is relevant to your situation, but I am 16 years old and was diagnosed with conversion disorder in early February of 2014. It took nearly two years to get a somewhat firm diagnosis of what I actually have, but after my older sister who is now 19 was diagnosed and I showed the same symptoms to the tee, the doctors just decided to give me the same diagnosis. The symptoms that the both of us showed were muscle seizures(originally misdiagnosed as dystonia), paralysis of the hands and feet, and massive headaches. Along with CD, the two of us both have a hereditary benign hypermobility joint disorder(Elers Danlos type3), as well as a pain amplification disorder which is pretty self explanatory, and I have sensory disorder. Both of our diagnoses took a very long time to be administered because we went to doctors who either did not understand what was going on due to the rare knowledge of this disorder, or in most cases, they simply didn't believe there was anything wrong with us, claiming that we were two completely normal teenage girls. This went on for nearly five years with my sister and two with me until wee finally found doctors who would listen and knew what was going on at children's medical center. After months of counseling for both of us, we learned to control our stress levels and pain levels, making it less likely for the symptoms to flare up again. In the past 20 months, I have had to use a wheelchair twice (8 months in total) and spent almost six months without use of my hands. It is now November and I lost use of my left hand for a third time last night. Praying to get better and using all skills I have at my disposal.
November 16, 2015 - 1:43pmThis Comment
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