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Anon - Self-diagnosis is not a good practice for anyone. While you can make an educated guess from researching information, you need to partner with your doctors to diagnose and treat a medical condition. If you feel your doctors aren't responsive then it sometimes takes getting additional opinions, additional testing and other measures.

The founder of this site had issues following a hysterectomy, but you have not mentioned having one, so I'm not clear why you mentioned her or reviewed her videos. You've made multiple mentions of bone pain. If you have not seen an orthopedic specialist then you should consider seeing one.

It may be helpful for you to put together a written timeline of the symptoms you have experienced and to seek help from a doctor who can review the entire situation as a whole and at a glance. Copies of your test results would also help.

We do not diagnose conditions or provide medical advice, we are here to help you help yourself and to get support from other women. It may be that you have an uncommon condition. It typically takes more time. perseverance and work than it takes with a common condition to get the diagnosis and support that a patient needs. We wish you well in getting the treatment you need.

December 9, 2010 - 5:10pm

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