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Anonymous (reply to Cary Cook BSN RN)

I have to say that the parathyroidectomy took care of all symptoms except the anxiety, which has gotten better, sleep disfunction and depression. The other symptoms are either gone all together or are getting better over time. I have seen a nuerologist. I am on amerix for tension headaches which seems to help. She told me the muscle spasms will get better over time as my body heals from the parathyroidectomy/hypercalcemia. The muscle spasms are slowly going away. My over powering headaches went away directly after the parathyroidectomy. As stated above, I have muscle tension headaches but not the "old" kind of headaches were I could not get out of bed, they went away the day of the parathyroidectomy.
The only labs I have had since my surgery in November were basic thyroid function which came out perfect, pth which was perfect and calcium which was perfect. Those labs were drawn about six months ago. I have also changed physiciatrist but have continued the meds listed above. I asked him if he was familiar with endocrine problems and depression/other syc symptoms I have been having. He said he believes there is a direct link but he does not specialize in it. He said he has referred many patients to an endocrinologist. I have never been seen by an endocrinologist. The nepherologist is the one that discovered the parathyroid tumor. I then researched to find the most experienced surgeon (for the parathyroidectomy). The surgeon I went to had done about 2000 of them compared with an average of 150 average of other surgeons in the area. The nepherologist was from Manhattan ks and the surgeon was in Omaha Ne.
I did go to a gasterologist. I had a colonoscopy that did show damage to the colon. He was clueless about the hypercalcemia effects on the intestines. Needless to say I didn't go back to him after I discovered that I knew more about it than he did. (-:
I am willing to go to an endocrinologist, I just need to have an idea what to tell them to look for as it is such a broad scope. Another problem I have ran into, finding a dr that listens to symptoms and looks at labs in depth. I have not heard of a good endocrinologist in the area and do not want a repeat of dr's that don't listen. (I have been very spoiled with my nepherologist and gyno. They both take about 45 min for each office visit and look through labs comepletely.)
Thank you for helping me out. I look forward to reading anything you can find.

June 23, 2010 - 12:48pm

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