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Dear Alison,
I would love to tell you the details of my experiences. As I had mentioned we discovered it in Dec, of 2008, as I was short of breathe and it was becoming worse. MY blood oxygen was only reading 72, thus a very quick trip to the hospital for a week. After a biopsy of the lungs they discovered that I had IPF. I was put on oxygen at a level of at least 6m which I am still on. I have had numerous CAT and pulmonary function tests and have not changed from my original 30% lung loss as before.
As far as how I feel from day to day, that varies. Some days are better than others as weather makes a big difference. Ohio is not the best climate in the country. I have just retired from being a treasurer of a corporation for 37 years and really love retirement as I can do what I want and relax when I want. Of course, we take oxygen wherever we go, but seem to make do after this long.
Occasionally I have a cough, but nothing that requires medication for. My BP has dropped since I retired from 150/80 to 97/70. Can you believe that? Stressful jobs can make one get quite anxious. I can eat almost anything I want, yet my appetite is not the same as before,. I am 70 years old, but like to keep very busy and active. I don't sit still well. HA!!
Thank you for your kind concern. Hope to her from you soon.
Best Regards, Nancy

July 26, 2010 - 5:00am

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