Hi Tina,
It would be a privilege to talk with you and help in any way I can. It is hard for me to give you any intelligent answer regarding the extent of his brain injury and prognosis without knowing many more details. Could you please email me your phone number and I will call you, or please call me at (626)578-0833. If necessary, we can also bring one of our experts in the neurological effects of UCD to consult with your team in Utah so that everything possible is being done to help your husband.
Best,
Cindy
Cynthia Le Mons
Executive Director
National Urea Cycle Disorders Foundation
75 S. Grand Ave.
Pasadena, CA 91105
(626)578-0833
www(dot)nucdf(dot)org
Email: CureUCD(at)nucdf(dot)org
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Hi Tina,
It would be a privilege to talk with you and help in any way I can. It is hard for me to give you any intelligent answer regarding the extent of his brain injury and prognosis without knowing many more details. Could you please email me your phone number and I will call you, or please call me at (626)578-0833. If necessary, we can also bring one of our experts in the neurological effects of UCD to consult with your team in Utah so that everything possible is being done to help your husband.
Best,
April 5, 2010 - 8:07amCindy
Cynthia Le Mons
Executive Director
National Urea Cycle Disorders Foundation
75 S. Grand Ave.
Pasadena, CA 91105
(626)578-0833
www(dot)nucdf(dot)org
Email: CureUCD(at)nucdf(dot)org
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