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Anonymous

My grandson was born at 25 weeks- 2.2 lbs- he too has BPD- We are so unbelievable grateful to Nationwide Childrens hospital in Columbus Ohio- he is in several studies there. He formed a growth/ tumor which was removed at 6 months- after that - he never used Oxygen again. He is amazing. He has had pneumonia one time following bad cold during the winter at 1 1/2 yrs- but is doing great. He runs, plays and you would never know he has any issues. We keep him home during cold and flu season for the time being and with the COVID 19 crisis- we are super cautious- no one is allowed in or out except one grandparent to help with caring for 3 kids and mom's sanity lol He is smaller than most kids his age and a little behind on speech. We work with him a lot and he has therapy and follow up with Childrens regularly. Not sure what else to expect- hopefully no more complications? Glad to have any input. He shockingly seems perfectly normal to watch him run and play. He is our wild one.. ha ha

April 21, 2020 - 2:59pm

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