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Anonymous

Hi Pat, Maria and eveyone else on this blog,

I have been in touch with my neurologist who is head at NYU Medical Center. I told him that my head pains aren't better. I started physical therapy. Did it about three years ago and all my pains went away. I do have some neck stuff (have an MRI of my cervical spine) that shows some stuff. So I'm back to therapy again. However, I did have a heart to heart direct conversation with my neurologist. He said that most neurosurgeons tend to wait later than sooner in dealing and removing these cysts. I asked him about another brain scan (my last one was in October at Lenox Hill Radiology in NYC) a fantastic facility. They use a 3 Tesla machine (very strong) so you get a great picture. He said that it's never too soon to get another MRI so I'll probably have another one soon. In addition, I told him I want another neurosurgeon opinion. He was familiar with Barrows Neurological Institute in Phoenix. He did suggest that I did not need to travel that far and said he would make some phone calls to help me find another doctor for a another opinion. I will be contacting him this week. I will be curious to see who and where he suggests. I'm praying that my head pains are neck related and not cyst related, but as a born again Christian I feel that this is in God's hand and that he will direct me. However, Pat if you have the names of any facilities or doctors on the East Coast, I welcome any research that you can advise me with. Maria, I pray for you that you will find healing and physical comfort. I'm curious to know who you are going to see and where they are in New York. I'm glad that there is a petition going on. I agree that there needs to be more education on this. Pat I will pray for you too and hope that you will find the answers to your leukemia. God Bless to all of you. Thanks 1cuponatime for sharing and supporting me.

Debbie

April 17, 2010 - 5:36pm

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