So I have my arachnoid cyst that we have been monitoring for almost 3 years. I think I have memory problems, of course, headaches but the reason we are now doing surgery is that my optic nerve is continuing to thin. When we first discovered it my optic nerve was already thinning but we were watching it to see if it would change, well it did. The optic nerve swells when there is too much pressure inside of your head but then after a prolonged period of time it thins causing vision loss that is not reversible. so, my peripheral vision is not great. But now I am having surgery and there is a whole lot of "medical" stuff online which is so basic it is really nothing, but I wanted to know if anyone can offer person to person advice... How to really prepare for this, what should I have at home to help with the recovery, what might I want to take to the hospital, what kinds of things should I tell my friends and family so they can prepare? I already know I will be in ICU 1 day and regular hospital 4-5 more days and maybe longer if I need a 2nd surgery to shunt, because he doesn't want to shunt of first surgery because if fenestration is successful a shunt may not be needed. Oh and mine is in the center of my brain in the cavum vellum interpostum - for most people, this is a small triangle you can hardly see, for me, it is a 5cm triangle which is really taking up my brain space. But there is no way to get to it without going through brain tissue. Most brain surgeries I am seeing for arachnoid cysts they are accessible without damaging healthy brain tissue. but i am having a hard time finding an instance where a dr has had to enter the right frontal lobe to reach the center of the brain where it talks about the patient recovery and outcome. I suppose there is no way to know because we are all created so different and unique. But this mama bear of 3 likes to know everything - but I have my faith and my trust in God who knew about this when he created me and though we may not always know the outcomes, His ways are higher than ours and His plans are always greater! The flowers in the field don't grow if a storm doesn't pass and drop the rain so though I am going to walk through this season where I don't know the outcome I have faith believing that there will be flowers on the other side of the storm and through the good that comes may not be good in the eyes of man - I believe that there is a divine purpose... If anyone has any brain surgery tips please share.
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So I have my arachnoid cyst that we have been monitoring for almost 3 years. I think I have memory problems, of course, headaches but the reason we are now doing surgery is that my optic nerve is continuing to thin. When we first discovered it my optic nerve was already thinning but we were watching it to see if it would change, well it did. The optic nerve swells when there is too much pressure inside of your head but then after a prolonged period of time it thins causing vision loss that is not reversible. so, my peripheral vision is not great. But now I am having surgery and there is a whole lot of "medical" stuff online which is so basic it is really nothing, but I wanted to know if anyone can offer person to person advice... How to really prepare for this, what should I have at home to help with the recovery, what might I want to take to the hospital, what kinds of things should I tell my friends and family so they can prepare? I already know I will be in ICU 1 day and regular hospital 4-5 more days and maybe longer if I need a 2nd surgery to shunt, because he doesn't want to shunt of first surgery because if fenestration is successful a shunt may not be needed. Oh and mine is in the center of my brain in the cavum vellum interpostum - for most people, this is a small triangle you can hardly see, for me, it is a 5cm triangle which is really taking up my brain space. But there is no way to get to it without going through brain tissue. Most brain surgeries I am seeing for arachnoid cysts they are accessible without damaging healthy brain tissue. but i am having a hard time finding an instance where a dr has had to enter the right frontal lobe to reach the center of the brain where it talks about the patient recovery and outcome. I suppose there is no way to know because we are all created so different and unique. But this mama bear of 3 likes to know everything - but I have my faith and my trust in God who knew about this when he created me and though we may not always know the outcomes, His ways are higher than ours and His plans are always greater! The flowers in the field don't grow if a storm doesn't pass and drop the rain so though I am going to walk through this season where I don't know the outcome I have faith believing that there will be flowers on the other side of the storm and through the good that comes may not be good in the eyes of man - I believe that there is a divine purpose... If anyone has any brain surgery tips please share.
July 17, 2018 - 2:51pmThis Comment
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