I was diagnosed with Acute Interstitial Pneumonitis 3 weeks ago after I was admitted to the ICU through the ER. I ended up there for 8 days. I was suffering from a 4 month long cough along with progressively worse breathing. By the time I got to the ER I was really struggling to get a good breath. 3 days later they did a Bronch and took a small biopsy of my lung which showed up no Fungus or Bacteria but the above mentioned disease. I am only 34 years old and they have no clue where I got it from. I am an otherwise healthy woman. I am now at home and have some difficulties, but they were really aggressive with medication in the hospital and they are doing the same since I have come home. I go to the pulmonologist every 6 weeks and just had a PFT and a 6MWT yesterday to see how I am responding to the medications. (steroids and Cortosteriods) I have two young children who need their mom and I am super scared of what could possibly happen in the next few months/years. I have had no luck finding anyone my age with the disease to see what treatments they have done and how they have progressed. I'm hoping that this website can help link me to someone who can help or be of support.
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I was diagnosed with Acute Interstitial Pneumonitis 3 weeks ago after I was admitted to the ICU through the ER. I ended up there for 8 days. I was suffering from a 4 month long cough along with progressively worse breathing. By the time I got to the ER I was really struggling to get a good breath. 3 days later they did a Bronch and took a small biopsy of my lung which showed up no Fungus or Bacteria but the above mentioned disease. I am only 34 years old and they have no clue where I got it from. I am an otherwise healthy woman. I am now at home and have some difficulties, but they were really aggressive with medication in the hospital and they are doing the same since I have come home. I go to the pulmonologist every 6 weeks and just had a PFT and a 6MWT yesterday to see how I am responding to the medications. (steroids and Cortosteriods) I have two young children who need their mom and I am super scared of what could possibly happen in the next few months/years. I have had no luck finding anyone my age with the disease to see what treatments they have done and how they have progressed. I'm hoping that this website can help link me to someone who can help or be of support.
May 23, 2013 - 7:14amThis Comment
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