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Oh Sue - I just can't imagine what it must have been like for you to deal with yet another problem while you're still seeking answers. It sounds like the doctor you're now seeing is giving you more information and a better explanation for what's causing your pain - am I reading that correctly? It also sounds like she wasn't able to provide any type of name for the symptoms you're experiencing, which leaves your diagnosis vague. Will you be able to see a neurologist who specializes in pain management?
I'm glad you're going to try massage therapy and the therapy balls, and admire your can do spirit in moving forward to support your own health. Let us know how your next physician visit goes and if we can assist you in your quest. We wish you the best and some real answers. Take care, Pat