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thank you for trying to correct the way people think i have had rsd/crps since 01 mine was from an I.V. it has now caused me to also have fibromyalgia.ankylosing spodilytus hypothyroidism adrenal problems and my face has completely atrophied on the left side it is hard enough to be in pain all the time but now to watch my face become a big indention or caved in beacause i now have parrry romberg syndrome which is another autoimune disease is devastating we need help making people understand hoew horrible this thing is and we need help raising awareness if you can please reach out to us or if you know someone who will not just talk to the medical community but to the people suffering everyday from this thing it would be so helpful i have a support group here in oklahoma and 75 percent of them are homebound from this thing we call rsd we need help getting the word out because this needs to be caught in the first three months if possible but because their is not one test to confirm this syndrome most drs. do not even know what it is i was just in the hospital for 24 hours and only one doctor or nurse knew what i have that is terrible this is whty we need the word to get out that this is real

August 11, 2010 - 6:51pm

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