Jessica you have really been through it. :( I am a little worried mine may be worse than they think as well but I have finally found a dr who I trust. I had several refuse to see me, either didn't feel they could do anything different or who knows why. I even consulted Mayo Clinic and they refused as well. However, I found a dr who has treated tibial avasucalar necrosis with some decent success.
So here is her plan: take bone from my pelvis to graft because she said the dead bone has to be dealt with before a fusion could work. I will then have an external fixator for 4 months with no weightbearing. She said this is a salvage surgery and she thinks she can "buy" me a few good years before a fusion will have to be done. So we will see, she did address all the issues I had about the fusion being done and the dead bone being left in there to collapse. I know a normal ankle is out of the question but I just want whatever has to be done to be done right. Very nervous about dealing with the external fixator, anyone got any tips for that? :)
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Jessica you have really been through it. :( I am a little worried mine may be worse than they think as well but I have finally found a dr who I trust. I had several refuse to see me, either didn't feel they could do anything different or who knows why. I even consulted Mayo Clinic and they refused as well. However, I found a dr who has treated tibial avasucalar necrosis with some decent success.
So here is her plan: take bone from my pelvis to graft because she said the dead bone has to be dealt with before a fusion could work. I will then have an external fixator for 4 months with no weightbearing. She said this is a salvage surgery and she thinks she can "buy" me a few good years before a fusion will have to be done. So we will see, she did address all the issues I had about the fusion being done and the dead bone being left in there to collapse. I know a normal ankle is out of the question but I just want whatever has to be done to be done right. Very nervous about dealing with the external fixator, anyone got any tips for that? :)
February 6, 2012 - 6:54amThis Comment
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