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(reply to TinaStina)

I am so glad to have found this site, I have been going through the same issues, I have had a lump that moves about descending from my ribcage to right about my belly button. There are days where my right flank is absolutely on fire as well as the right front below my rib cage. The handfuls of Motrin, Tylenol, Alieve are not even touching the pain. Eating is not something that goes well with pain and I have nausea especially in the morning when I stand upright, right after getting out of bed. MRI, CT all showed nothing but gallstones and kidney cysts. Because I was laying on my back, so feeling like my Dr felt I was a nutcase (even though my ob/gyn felt it as well as my primary doctor) he luckily ordered an ultrasound of my liver and gallbladder due to the nausea well when I turned on my side out popped the lump and the ultrasound tech saw it too and got photos of it!! Finally something to prove Im not crazy!!!! Only problem I seem to have now is that "because this is so rare" its like the docs still dont quite know what to do or believe that this could possibly be causing me pain!! By the end of my work day I am in so much pain that all I want to do is come home and lay down. My weight is down from 130 to 115 (very slim for my height) and I have been making an effort to put weight on by drinking ensure shakes and trying to eat more! I had a hysterectomy in 2007 and had quite a lot of ovarian cyst and endometriosis prior to that. I am curious if anyone could let me know how their surgery turned out or how the found a qualified physician since doctors dont seem to be very schooled in this as I am being told "its rare" and "just not common"

September 16, 2012 - 4:42pm

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