Hello Mary, and thanks for writing. You're right, it is hard to find a lot of information on trigonitis, and that just adds to the frustration in dealing with it.
The trigone is a small, smooth triangular region at the base of the bladder that signals the brain when the bladder needs to be emptied. As the bladder becomes more full, the trigone increases the urgency of the signals to the brain.
In trigonitis, inflammatory lesions form on the trigone region, causing symptoms of urgency, frequency and pain.
Trigonitis is diagnosed much more often in women (usually of childbearing age) than in men. About 40% of women may have some squamous changes in the trigone, where it happens in only 5% of men. It is almost never diagnosed in children.
You mentioned that antibiotics were prescribed. Here is a doctor's forum from the IC association with a lot of questions and answers you may be interested in. There is one specific inquiry about trigonitis (check the 11th question) that discusses the use of antibiotics for treatment.
There are also a few questions here that address trigonitis:
Here are some women in a naturopathic network who are discussing trigonitis:
Hope this helps! In the meantime, is there anyone else out there who's been diagnosed with trigonitis? If so, we'd love to hear from you.
Take good care,