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Anne,
Thank you so much for sharing your story. I don't know what to say...I can not believe everything you have been through, and you are staying strong. You are truly amazing.

One thing that struck me is your sentence about all of your doctors working at the same hospital, yet they are not communicating with each other regarding your conditions? I looked up the Chandler Regional Hospital, and you may want to speak with someone in their Quality Management Department regarding Patient Safety Goals (these words always get their attention!), as one of JCAHO's goals (the accrediting institution) are to:
- "Improve communication among caregivers" (which can include your team of doctors)
- "Accurately and completely reconcile medications across the continuum of care" (possibly substitute "treatment and prevention modalities" in place of "medications")

If this interests you, click on the link below to access the Patient Safety page:
http://www.chandlerregional.org/Medical_Services/053176

There may also be a Patient Advocate that you can speak with about your concern for your continuity of care at the hospital.

Best wishes, and I hope we continue hearing from you!

September 6, 2009 - 8:37pm

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