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Anonymous

My son was diagnosed with Lupus Nephritis when he was 9. The treatment was doses of Cytoxan. We were told that his dose was lower than what they give cancer patients, but he still lost most of his hair and would be sick after the treatments (luckily, the doctors administer anti-nausea meds so he didn't get too sick). The treatments started off at every 4 weeks, and then got down to every 8 weeks. About a year after it had started, he was done, and has been taking Cellcept ever since. His kidneys are functioning at about 50%, and we have been told that he will most likely need a transplant in the future. It's been a long road (it will be 4 years in December since the diagnosis). My thoughts and prayers are with anyone having to deal with this disease.

July 12, 2009 - 5:57am

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