Hi,
So sorry to hear about your problems and your symptoms. They sound an awful lot like how mine started. Have you heard of my book, "It's all in Your Head," Maria McCutchen? Here is a link to it on Amazon.com....
You may want to take a look, get one and read it. Could be a good source of info for you and what to do and not do. You will probably find some similarities in our conditions too. I have gotten a lot of positive feedback from it and here is what one mom wrote to me yesterday, as a matter of fact. Her son was diagnosed with a brain cyst, and here is what she said after reading my book:
"In May my six-year-old son was diagnosed with an Arachnoid Cyst in his brain. He had surgery just two weeks after it was discovered because it is abnormally large and he was symptomatic. He wasn't a great candidate for fenistration, so he had a shunt/valve placed instead. Needless-to-say it has been very hard to adjust to what has just happened to our family in the last few months.
I devoured your book as soon as I got it in the mail. Thank you for writing about your experience with your cyst. As a parent of a younger child dealing with this, it is so powerful to read of your experiences with symptoms, procedures, and adjusting the shunt to the right settings.
Having an account of your knowledge and experiences will surely help my husband and me be aware of what symptoms of pressure to watch for in our son.
Thank you, Thank you, Thank you. . . . and keep staying positive. You are amazingly strong to have suffered so much and come out of it with a strong belief in God and grace to live your life completely."
Anyways, you may find it helps you in some way. If nothing more than to know there is someone else out there that shares your pain and frustration.
Keep keeping the faitih. Keep searching, too, for that doctor who is going to help you. Someone I just met online got the name of my neurosurgeon, the one who operated, and sent him his records and films to get his opinion. That is what I did and wound up having 2 brain surgeries by him....one to fenestrate the cyst and one to put in a shunt. His name is Dr. Robert Spetzler at Barrow's in Phoenix.....should you want to research him.
Anyways, keep me informed and keep keeping the faith. You will get the treatment and care you need and deserve. It may take some effort on your part to find the right doctor, but do not give up. Your brain, your body and your health depend on it.
Comment Reply
Hi,
So sorry to hear about your problems and your symptoms. They sound an awful lot like how mine started. Have you heard of my book, "It's all in Your Head," Maria McCutchen? Here is a link to it on Amazon.com....
http://www.amazon.com/Its-Your-Head-Maria-McCutchen/dp/1613460716/ref=sr_1_1?s=books&ie=UTF8&qid=1340461645&sr=1-1&keywords=it%27s+all+in+your+head+maria+mccutchen
You may want to take a look, get one and read it. Could be a good source of info for you and what to do and not do. You will probably find some similarities in our conditions too. I have gotten a lot of positive feedback from it and here is what one mom wrote to me yesterday, as a matter of fact. Her son was diagnosed with a brain cyst, and here is what she said after reading my book:
"In May my six-year-old son was diagnosed with an Arachnoid Cyst in his brain. He had surgery just two weeks after it was discovered because it is abnormally large and he was symptomatic. He wasn't a great candidate for fenistration, so he had a shunt/valve placed instead. Needless-to-say it has been very hard to adjust to what has just happened to our family in the last few months.
I devoured your book as soon as I got it in the mail. Thank you for writing about your experience with your cyst. As a parent of a younger child dealing with this, it is so powerful to read of your experiences with symptoms, procedures, and adjusting the shunt to the right settings.
Having an account of your knowledge and experiences will surely help my husband and me be aware of what symptoms of pressure to watch for in our son.
Thank you, Thank you, Thank you. . . . and keep staying positive. You are amazingly strong to have suffered so much and come out of it with a strong belief in God and grace to live your life completely."
Anyways, you may find it helps you in some way. If nothing more than to know there is someone else out there that shares your pain and frustration.
Keep keeping the faitih. Keep searching, too, for that doctor who is going to help you. Someone I just met online got the name of my neurosurgeon, the one who operated, and sent him his records and films to get his opinion. That is what I did and wound up having 2 brain surgeries by him....one to fenestrate the cyst and one to put in a shunt. His name is Dr. Robert Spetzler at Barrow's in Phoenix.....should you want to research him.
Anyways, keep me informed and keep keeping the faith. You will get the treatment and care you need and deserve. It may take some effort on your part to find the right doctor, but do not give up. Your brain, your body and your health depend on it.
Talk to you soon -
Maria
July 27, 2012 - 2:51pmThis Comment
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