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Anonymous

Hi my name is Jess, I'm 19 years old, and I live in Australia. I had a scan done on my head recently for an injury to my face, and they incidentally found a cyst on the left side of my posterior fossa, 1.2cm, they think its an epidermoid cyst. I've noticed that this forum is about arachnoid cysts but I don't know where else to go on the internet to talk about this..there is hardly anything on the internet about brain cysts? And I'm sure the two kinds of cysts are similar, seeing as the symptoms seem to be the same. Over time I've developed trailing vision, headaches at the back of my head, I've now got a stutter when i talk, I have alot of trouble walking normally, and I have trouble looping sentences together; I can't even think straight anymore...I've read all the comments on here by the way...The hospitals aren't helping me either. They are supposed to contact me for my mri and they haven't and have lost my referal or something. They're pretty hopeless! I'm starting to agree they don't seem to take brain cysts seriously...Also there is a nurse strike on at the moment that might be causing the bad service...All I know is I'm scared, I want help, and I don't seem to be getting any. I'm here on the internet, on this website tonight, because I don't want to just sit here not doing anything about it. One thing I would really like is to at least know everything I can about what's going on in my brain. I want to know more about brain cysts and brain surgery. I'm also writing here to vent, and to try to connect with other people who are going through the same thing...but I mostly really need help with finding information. This is the first forum I have found. Can anybody help me? Perhaps refer me to a good website? Thank you, and thank you for reading.

-Jess
PS. I hope yous are all going okay. I feel your pain, I really do.

December 7, 2011 - 5:14am

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