I understand what you are going through. My doctors did not want to believe that all my symptoms were being caused by cyst either. I had to push and pursue finding someone who did believe my cyst was the root of my problems and a doctor who knew how to treat them. Brain cysts, depending on where they are lockated, what they are putting pressure on, can cause seizures. They do cause balance problems and headaches. All that you mention "can" be symptoms of a brain cyst.
I would pursue finding another doctor, a neurosurgeon, who does understand brain cysts. I would start making notes about the symptoms, keeping a diary of what you live with to share with doctors. And you can read my book to see what I went through with mine, and the many complications I lived with and still live with, due to doctors not listening. My book is titled, "It's all in Your Head." It's available on Amazon.com through the publisher at: http://www.tatepublishing.com/bookstore/book.php?w=9781613460719
Don't give up. If you know what you were like at one point in your life and how things have changed for you, and you have been diagnosed with a brain cyst, then pursue it. I don't know how far you are willing to travel for treatment but Barrows Neurological Institute in Phoenix is wonderful. Dr. Robert Spetzler was my neurosurgeon and he understood well, the patterns, the complications and symptoms these brain cysts can cause. I would start calling neurosurgeons in your area, and ask if he/she deals with brain cysts. If so, I would then send a letter directly to doctor along with a copy of my records and films and ask if he could and would treat you. It takes time and can some money to have to get copies of your recoreds and films and mail them, but can be worth it to find a good neurosurgeon who is willing and able to help you.
Keep us posted, and check out my book. It could be a help to you.
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Hi Claudia,
I understand what you are going through. My doctors did not want to believe that all my symptoms were being caused by cyst either. I had to push and pursue finding someone who did believe my cyst was the root of my problems and a doctor who knew how to treat them. Brain cysts, depending on where they are lockated, what they are putting pressure on, can cause seizures. They do cause balance problems and headaches. All that you mention "can" be symptoms of a brain cyst.
I would pursue finding another doctor, a neurosurgeon, who does understand brain cysts. I would start making notes about the symptoms, keeping a diary of what you live with to share with doctors. And you can read my book to see what I went through with mine, and the many complications I lived with and still live with, due to doctors not listening. My book is titled, "It's all in Your Head." It's available on Amazon.com through the publisher at: http://www.tatepublishing.com/bookstore/book.php?w=9781613460719
Don't give up. If you know what you were like at one point in your life and how things have changed for you, and you have been diagnosed with a brain cyst, then pursue it. I don't know how far you are willing to travel for treatment but Barrows Neurological Institute in Phoenix is wonderful. Dr. Robert Spetzler was my neurosurgeon and he understood well, the patterns, the complications and symptoms these brain cysts can cause. I would start calling neurosurgeons in your area, and ask if he/she deals with brain cysts. If so, I would then send a letter directly to doctor along with a copy of my records and films and ask if he could and would treat you. It takes time and can some money to have to get copies of your recoreds and films and mail them, but can be worth it to find a good neurosurgeon who is willing and able to help you.
Keep us posted, and check out my book. It could be a help to you.
Thanks,
October 21, 2011 - 4:14amMaria
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