I am so glad to see a forum like this and reading all the stories of people affected with these awful conditions and disorders. I would like to tell my story here as simple as possible and directly to the the point. My name is Kevin and I just turned 51 and last October 2010, I had just got up and was doing my normal thing , drinking coffee and all of sudden I told myself I think I'm gonna be sick and all of the sudden I couldn't get my breath and was gasping for air, I thought maybe if I get up and go out on the porch I would be better for it was a little cooler and I was sweating much. I got up and couldn't go any further and was desperately trying to get my breath. My mom was there and was freaking out and told my cousin to call 911 which she did. I sat back down and she got her blood pressure machine out and checked my pressure all while i was trying to get my breath, it was 65/55 any way the ambulance got there and immed gave me oxygen and by the time I got to hospital I had stabilized. Check'd out later that afternoon w/ syncope /dyspnea. I was referred to to see medical professional with 3-5 days. It took three months to get in. He said he would get hospital report which I believe as of this day he still has not, but anyway. I have had pain in my ears even before this happened for probably the last couple of years or so, just a continuous dull ache sometimes not so bad and other times more severe and hurting worse for days and weeks at a time. any way the Doctor had checked me for sexual disease's, hept's ABC, markers for heart disorders and such over the next few months. 7 months later in may 2011. Before i ever got out of bed I was dizzy and unbalanced, for i did get out of bed and about hit the wall. This was not vertigo for I have had it before. the doc had checked my ears earlier and said they looked good with no signs of infection or build-up, meanwhile this lasted approx 3 days more seveir and a couple of more days less intense and getting better. Over the next 3 months ear pain getting worse radiating, Then almost over night my chest started hurting and when I breathed I could feel it in my chest and it hurt much. Just to put your finger on my chest hurt so bad all the while I noticed my ears were hurting when i took each breath as well as my chest so I went to hospital. They did ekg and it was fine did numerous blood works looking for heart markers. Blood pressure was elevated and heart rate was normal rate. CT scan of chest showed calcified granaloma in right lung with multiple calcified lymph nodes, 2 simple cysts in liver and nothing else to mention. I was released diagnosed with pluresy and told to take it easy and was referred to cardiologist for followup. Cardiologist wants me to do couple of different types of stress test but cant do right now due to the ear pain still on going when i breath. This is now sept , my chest is still sore some to the touch but doesn't hurt much when i breath, but my ears still hurt with every breath. Also I had been hoarse somewhat during all this which has finally got better, but still have much neck tenderness along with right side of face has different feeling, a feeling of deadness, but not, cause i can still feel. I was referred to ENT and have since went thru a head MRI after hearing test proved big difference left ear. I had no idea, but he recommended the MRI w/ contrast. He said whenever they see that difference between the hearing loss they think of tumors and such. Anyway the MRI results showed a Posterior Fossa Archnoid Cyst. I go back to the ENT on Monday the 3rd and he doesn't even know I know. Earlier this week I had went for a followup for my hip necrosis w/ family doctor that's been monitoring all this and he looked up the MRI results and wasn't even gonna tell me anything about it until he was done telling me he didn't really see anything wrong and I said isn't there a cyst and he looked at me and said how did you know? I said look doc, you know i get copies of all my test and reports and yes I got a copy of the report even before I went back to the ENT . He said he didn't think that was causing my problems, but would leave it to the ENT I mean after all he has not seen the films, so how would he know even what size it is or exactly where it is. The films depict that . Also I have had a lot of ringing in my ears. Since the MRI on the 22nd I have had some headache pains in my head, nothing that last long , thanks GOD, but all the same is real painful. After reading and learning much about this, it seems that , not all patients have the same symptoms and symptoms are not so revealing themselves. I believe they are learning more and thanks to medical technologies we have learned so much, but there is still so much to learn. I feel like the founder of this forum, I don't want to wait and start having seizures, black-outs spells, be continually puking or just flat out die over this. I know if another attack comes on like before when i couldn't breath, if it would've been any worse II wouldn't made it. I mean there is much to learn and I hope they figure it out soon. I just want to go back to feeling good again. Ear pain, especially when breathing , Facial sensation difference, chest discomfort, neck tenderness/soreness, headache pains, not extending at this time, but the short little pains are more painful than any head pain I have ever had. I mean could this all be related to the cyst and pressure being put on the cerebellum or spinal cord. If anyone of you have suffered similar symptoms please let me know. I will let you all know what the ENT says on the 3rd. GOD BLESS you all
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I am so glad to see a forum like this and reading all the stories of people affected with these awful conditions and disorders. I would like to tell my story here as simple as possible and directly to the the point. My name is Kevin and I just turned 51 and last October 2010, I had just got up and was doing my normal thing , drinking coffee and all of sudden I told myself I think I'm gonna be sick and all of the sudden I couldn't get my breath and was gasping for air, I thought maybe if I get up and go out on the porch I would be better for it was a little cooler and I was sweating much. I got up and couldn't go any further and was desperately trying to get my breath. My mom was there and was freaking out and told my cousin to call 911 which she did. I sat back down and she got her blood pressure machine out and checked my pressure all while i was trying to get my breath, it was 65/55 any way the ambulance got there and immed gave me oxygen and by the time I got to hospital I had stabilized. Check'd out later that afternoon w/ syncope /dyspnea. I was referred to to see medical professional with 3-5 days. It took three months to get in. He said he would get hospital report which I believe as of this day he still has not, but anyway. I have had pain in my ears even before this happened for probably the last couple of years or so, just a continuous dull ache sometimes not so bad and other times more severe and hurting worse for days and weeks at a time. any way the Doctor had checked me for sexual disease's, hept's ABC, markers for heart disorders and such over the next few months. 7 months later in may 2011. Before i ever got out of bed I was dizzy and unbalanced, for i did get out of bed and about hit the wall. This was not vertigo for I have had it before. the doc had checked my ears earlier and said they looked good with no signs of infection or build-up, meanwhile this lasted approx 3 days more seveir and a couple of more days less intense and getting better. Over the next 3 months ear pain getting worse radiating, Then almost over night my chest started hurting and when I breathed I could feel it in my chest and it hurt much. Just to put your finger on my chest hurt so bad all the while I noticed my ears were hurting when i took each breath as well as my chest so I went to hospital. They did ekg and it was fine did numerous blood works looking for heart markers. Blood pressure was elevated and heart rate was normal rate. CT scan of chest showed calcified granaloma in right lung with multiple calcified lymph nodes, 2 simple cysts in liver and nothing else to mention. I was released diagnosed with pluresy and told to take it easy and was referred to cardiologist for followup. Cardiologist wants me to do couple of different types of stress test but cant do right now due to the ear pain still on going when i breath. This is now sept , my chest is still sore some to the touch but doesn't hurt much when i breath, but my ears still hurt with every breath. Also I had been hoarse somewhat during all this which has finally got better, but still have much neck tenderness along with right side of face has different feeling, a feeling of deadness, but not, cause i can still feel. I was referred to ENT and have since went thru a head MRI after hearing test proved big difference left ear. I had no idea, but he recommended the MRI w/ contrast. He said whenever they see that difference between the hearing loss they think of tumors and such. Anyway the MRI results showed a Posterior Fossa Archnoid Cyst. I go back to the ENT on Monday the 3rd and he doesn't even know I know. Earlier this week I had went for a followup for my hip necrosis w/ family doctor that's been monitoring all this and he looked up the MRI results and wasn't even gonna tell me anything about it until he was done telling me he didn't really see anything wrong and I said isn't there a cyst and he looked at me and said how did you know? I said look doc, you know i get copies of all my test and reports and yes I got a copy of the report even before I went back to the ENT . He said he didn't think that was causing my problems, but would leave it to the ENT I mean after all he has not seen the films, so how would he know even what size it is or exactly where it is. The films depict that . Also I have had a lot of ringing in my ears. Since the MRI on the 22nd I have had some headache pains in my head, nothing that last long , thanks GOD, but all the same is real painful. After reading and learning much about this, it seems that , not all patients have the same symptoms and symptoms are not so revealing themselves. I believe they are learning more and thanks to medical technologies we have learned so much, but there is still so much to learn. I feel like the founder of this forum, I don't want to wait and start having seizures, black-outs spells, be continually puking or just flat out die over this. I know if another attack comes on like before when i couldn't breath, if it would've been any worse II wouldn't made it. I mean there is much to learn and I hope they figure it out soon. I just want to go back to feeling good again. Ear pain, especially when breathing , Facial sensation difference, chest discomfort, neck tenderness/soreness, headache pains, not extending at this time, but the short little pains are more painful than any head pain I have ever had. I mean could this all be related to the cyst and pressure being put on the cerebellum or spinal cord. If anyone of you have suffered similar symptoms please let me know. I will let you all know what the ENT says on the 3rd. GOD BLESS you all
September 30, 2011 - 1:34pmThis Comment
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