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(reply to Anonymous)

Have you asked your husband's doctor for recommendations of other doctors in his specialization, for a second opinion? A good, credible doctor would encourage you to seek a second opinion, talk with another surgeon who has performed more surgeries, and would tell you how to search for doctors in your area. Use your current husband's medical staff for this information!

While you wait to hear from other's who may have a doctor recommendation in your specific area, there are some other places you may look to begin your research. I would start a list, using these organizations as starting places, and see if a few doctor names are repeated and worth a phone call to their office. You can inquire about number of surgeries performed by the specific neurosurgeon, ask what other surgeons are recommended...think of this as interviewing doctors and you will find one that is the best fit for your family.

Here is the information I compiled to help.

Narrow down your search, and begin by finding a Board Certified Neurosurgeon in your area by going directly to the Professional Organization site:
1. The American Board of Neurological Surgery, Directory of Diplomates in Louisville, KY: http://www.abns.org/diplomates/default.aspx

2. The American Association of Neurological Surgeons also lists Board-certified neurosurgeons by region: http://www.aans.org/Find%20a%20Board%20Certified%20Neurosurgeon/Search.aspx

3. NORD (National Organization for Rare Disorders) arachnoid cysts site: http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/989/viewAbstract provides list of national organizations and a patient networking program. The patient information center (800-999-NORD) says, "if you have questions about topics related to accessing needed services, a NORD nurse may help. Also genetic counselor makes referrals to counseling centers". You can call this number and ask if there are doctors in your area who have specialize in arachnoid cyst treatment.

4. The Arachnoid Cyst Awareness group (linked from NORD) provides a list of doctors by major city. None are listed for Kentucky, but you may use this to call your nearest hospital listed on this directory, and ask for their recommendation for your city: http://arachnoid-cyst.com/

5. You can also view some of these same sites, identified above, on the National Institutes of Health Office of Rare Disease Research: http://rarediseases.info.nih.gov/GARD/Condition/17/Arachnoid_cysts.aspx. You know the website is credible when it is referenced by a website ending with ".gov".

6. US. News & World Report provides list of best hospitals, based on location and specialty: http://health.usnews.com/best-hospitals/area/louisville-ky/neurology-and-neurosurgery

July 3, 2011 - 8:18pm

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