Hi,
So sorry to hear about your troubles. You know, anything is possible. The cerebellum does play a role in fine motor skills, and that was one thing I had issues with before surgery and since surgery. Also, because the brain stem is also in the same vicinity, the cyst may (or may not) be putting pressure on the brain stem. The brain stem is where nausea is controlled and my brain stem was severely compressed from the cyst and I had nausea. I did not have too much of a problem with tremors, though I did occasionally experience them, and still do.
It is always good to get other things checked out, such as the inner ear, because just because you have a brain cyst, it doesn't mean that it is the cause of "everything," and all the symptoms you experience. But once you have gotten your inner ears checked and if nothing is found there, it helps to link these issues with something such as a brain cyst.
After you have your PET scan, you may want to ask your doctor if your brain stem is affected. To what degree is your cerebellum affected? Are they being compressed due to the cyst? What other organs of the brain are being affected by the cyst? Is your pituitary gland? Your optic chiasm? How about your ventricles. My 4th ventricle is severely narrowed, and when the flow of cerebral spinal fluid is interrupted in any way, this can cause pressure in the brain. If your optic chiasm is narrowed, it can affect certain aspects of your vision. Just ask him to show you your scans and point out the different areas of the brain and what the cyst is affecting....which areas. Once you know, you can start reading up on those areas of the brain, see what they are responsible for and this might help you to realize what is causing the symptoms you are having.
Once I learned all about my cyst, how large it was, where it was, what organs it was compressing and had damaged, I started reading about these organs and what they do for the body as a whole, and learned that my symptoms "were" being caused by my cyst. For instance, all my numbness I had at night while I slept....my entire body went numb from head-to-toe, was cuased from the cyst putting even more pressure on the brain stem when I layed down. Because mine is at the back of the brain where the brain stem and cerebellum are, those organs were being squished when I laid down. The cyst, putting pressure on the brain stem, also affected my breathing. I had terrible bouts of sleep apnea.
So if you know exactly which organs are being compressed or affected by the cyst, you can study up on what those organs do and what they are responsible for and deduct which symptoms you have and make an association. I listened to many doctors try to tell me that my cyst "couldn't be responsible" for so many of my issues, and it's funny that once the doctor who performed my surgery did the surgery, many of these symptoms either went away all together, or lessened a great deal.
I would simply recommend to study up on the brain and learn about the different areas and what they are responsible for, and tell your doctor that you want to hear all about your cyst....where it is and which parts of the brain are being affected by it. The more you know about your situation and your cyst, the more you can help your doctors learn too. They themselves, don't always know a lot about brain cysts. They are still considered rare and a mystery.
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Hi,
So sorry to hear about your troubles. You know, anything is possible. The cerebellum does play a role in fine motor skills, and that was one thing I had issues with before surgery and since surgery. Also, because the brain stem is also in the same vicinity, the cyst may (or may not) be putting pressure on the brain stem. The brain stem is where nausea is controlled and my brain stem was severely compressed from the cyst and I had nausea. I did not have too much of a problem with tremors, though I did occasionally experience them, and still do.
It is always good to get other things checked out, such as the inner ear, because just because you have a brain cyst, it doesn't mean that it is the cause of "everything," and all the symptoms you experience. But once you have gotten your inner ears checked and if nothing is found there, it helps to link these issues with something such as a brain cyst.
After you have your PET scan, you may want to ask your doctor if your brain stem is affected. To what degree is your cerebellum affected? Are they being compressed due to the cyst? What other organs of the brain are being affected by the cyst? Is your pituitary gland? Your optic chiasm? How about your ventricles. My 4th ventricle is severely narrowed, and when the flow of cerebral spinal fluid is interrupted in any way, this can cause pressure in the brain. If your optic chiasm is narrowed, it can affect certain aspects of your vision. Just ask him to show you your scans and point out the different areas of the brain and what the cyst is affecting....which areas. Once you know, you can start reading up on those areas of the brain, see what they are responsible for and this might help you to realize what is causing the symptoms you are having.
Once I learned all about my cyst, how large it was, where it was, what organs it was compressing and had damaged, I started reading about these organs and what they do for the body as a whole, and learned that my symptoms "were" being caused by my cyst. For instance, all my numbness I had at night while I slept....my entire body went numb from head-to-toe, was cuased from the cyst putting even more pressure on the brain stem when I layed down. Because mine is at the back of the brain where the brain stem and cerebellum are, those organs were being squished when I laid down. The cyst, putting pressure on the brain stem, also affected my breathing. I had terrible bouts of sleep apnea.
So if you know exactly which organs are being compressed or affected by the cyst, you can study up on what those organs do and what they are responsible for and deduct which symptoms you have and make an association. I listened to many doctors try to tell me that my cyst "couldn't be responsible" for so many of my issues, and it's funny that once the doctor who performed my surgery did the surgery, many of these symptoms either went away all together, or lessened a great deal.
I would simply recommend to study up on the brain and learn about the different areas and what they are responsible for, and tell your doctor that you want to hear all about your cyst....where it is and which parts of the brain are being affected by it. The more you know about your situation and your cyst, the more you can help your doctors learn too. They themselves, don't always know a lot about brain cysts. They are still considered rare and a mystery.
Good luck and keep us updated.
May 6, 2011 - 4:42amMaria
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