I just want to tell you first that I am sorry you are having these problems. There is nothing worse, in my opinion, to not feel well and try to get to the bottom of it. Sometimes you feel so alone in yur endeavors. But I have to say that I agree with you pursuing the cyst as being the cause of your problems. These cysts are known for putting pressure and adding pressure to your head. I could not get anyone to believe me about the pressure I dealt with, and that it was coming from my cyst. It took nearly a year before I found someone, Dr. Robert Spetzler, to believe me, and understand what I was talking about. Many times, doctors who do not fully understand these cysts, only go by their medical books. When they read that they do not "normally" cause problems, they tend to not think out-of-the-box.
Keep looking. See as many doctors as you need to, and I would stick with neurosurgeons if it were me in your position. These other branches of medicine are even less familiar with brain cysts, and they will just run up a bunch of bills for you ordering a slew of tests that will not only, "not" tell them anything, but keep you running to other specialists. If it were me in your shoes, and felt as sure as you do that it is your cyst, I would get more opinions in the neurosurgery field. If you see several of them and they all agree it is not your cyst, then maybe pursue other options. Personally, what you describe as your symptoms, sound so much like what I dealt with that it is hard to believe that it "isn't" your cyst.
Of course, this is up to you. This is just my opinion and knowing the information I know, and what I dealt with. Keep us updated with your endeavors. I wish you all the luck and will keep you in my thoughts and prayers.
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Hi Adrian,
I just want to tell you first that I am sorry you are having these problems. There is nothing worse, in my opinion, to not feel well and try to get to the bottom of it. Sometimes you feel so alone in yur endeavors. But I have to say that I agree with you pursuing the cyst as being the cause of your problems. These cysts are known for putting pressure and adding pressure to your head. I could not get anyone to believe me about the pressure I dealt with, and that it was coming from my cyst. It took nearly a year before I found someone, Dr. Robert Spetzler, to believe me, and understand what I was talking about. Many times, doctors who do not fully understand these cysts, only go by their medical books. When they read that they do not "normally" cause problems, they tend to not think out-of-the-box.
Keep looking. See as many doctors as you need to, and I would stick with neurosurgeons if it were me in your position. These other branches of medicine are even less familiar with brain cysts, and they will just run up a bunch of bills for you ordering a slew of tests that will not only, "not" tell them anything, but keep you running to other specialists. If it were me in your shoes, and felt as sure as you do that it is your cyst, I would get more opinions in the neurosurgery field. If you see several of them and they all agree it is not your cyst, then maybe pursue other options. Personally, what you describe as your symptoms, sound so much like what I dealt with that it is hard to believe that it "isn't" your cyst.
Of course, this is up to you. This is just my opinion and knowing the information I know, and what I dealt with. Keep us updated with your endeavors. I wish you all the luck and will keep you in my thoughts and prayers.
Maria
March 3, 2010 - 6:30amThis Comment
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