I expect it was difficult for you to even be able to write your comment. I empathize with how hard it is to do some of the things you really want to do.
My doctor wasn't helpful, no. He didn't get in my way exactly. If I asked to see this specialist or that specialist he would always give me a referral. But he had no knowledge of my condition and made no pretense that he would try to find anything out about it either.
My naturopath has made a huge difference for me in the past 2 yrs. Before that time, I had learned that low-carb is best for me. My symptoms lessened almost immediately. Not that they didn't also flare up sometimes and crash me, but on the whole, things got a bit less ... bad.
Sleep was very important. The more you can sleep the better. Any sleep is a good sleep. Also, lying down in a quiet room, especially with eyes closed, helps. Even sitting up in bed reading or watching TV can be a good thing. Less stimuli than sitting for instance in a busy living room with other people talking, coming and going, etc. Even moving from a big visually more stimulating room to a smaller one makes a difference (eg. my living room to my bedroom).
You might consider lying down for 10 -20 minutes every one and a half to 2 hrs through the day. Just regenerate for that little bit, every couple hours. Works with the ultradian cycle. Google it, you'll find a few interesting sites.
Also, if you can have a more or less regular lay-down time, maybe morning and afternoon and evening, if you need that many take that many. It will help you heal. I used to go to bed to sleep after being up for like 2 hrs in the morning; then by late afternoon another couple hours, sleep or read; and then I'd read from 8 p.m. till bedtime in my room. It helped. It's an investment. It's regenerating. It isn't being weak. It isn't giving up. It's reclaiming your life. It's protecting your life.
Through my naturopath, I've learned some things. Eg. I take omega 3 oil, liquid. It helps the joint and muscle pain. Also helps the brain, central nervous system, among other things.
Also, I take 7,000 IU's a day of Vitamin D3. I started lower, after reading about its benefits, and gradually increased. I ran out for a couple weeks and started crashing -- felt like I was in a heavier gravity, weighted down, gasping and panting, legs weighed a million pounds, could hardly hold up my head, and very foggy. All symptoms that had been gone for months, maybe a year. And now back! Scary.
Within 2 days of starting back on Vit. D, the symptoms began to ease and within a week or so, pretty much gone except for times of extra duress or tiredness.
For tired adrenals, I take ashwaghanda. Licorice tea is good for this too. Ginseng was too strong for me, made me feel like I was on speed (the CFS version anyway)and couldn't sleep at night. Google adrenal fatigue or adrenal insufficiency.
Whey protein isolate helped my distressed GI tract. Helped get regular, also selenium tablets work together with the whey protein. Other things, I take liquid chlorophyll, it helps clean toxins from the blood etc.
Apparently we just leak magnesium like crazy, so you could check that out. New data says if you're also taking calcium, take an equal amount of both, NOT twice as much calcium as magnesium.
My naturopath figured I needed some detoxification. Figured I probably had still undealt with infection, viruses, bacteria. Oil of Oregano in liquid or capsule are antibacterial, antiviral. Probiotics help balance bacteria in intestines.
This is getting way long so I should tie it up. Everyone with CFS has their own unique symptoms but some things are universal. Hopefully there might be something here of use to you.
Let me know one way or the other. 'Cause I've got more. :-)
Comment Reply
Hi CJ. My daughter-in-law goes by CJ as well. :-)
I expect it was difficult for you to even be able to write your comment. I empathize with how hard it is to do some of the things you really want to do.
My doctor wasn't helpful, no. He didn't get in my way exactly. If I asked to see this specialist or that specialist he would always give me a referral. But he had no knowledge of my condition and made no pretense that he would try to find anything out about it either.
My naturopath has made a huge difference for me in the past 2 yrs. Before that time, I had learned that low-carb is best for me. My symptoms lessened almost immediately. Not that they didn't also flare up sometimes and crash me, but on the whole, things got a bit less ... bad.
Sleep was very important. The more you can sleep the better. Any sleep is a good sleep. Also, lying down in a quiet room, especially with eyes closed, helps. Even sitting up in bed reading or watching TV can be a good thing. Less stimuli than sitting for instance in a busy living room with other people talking, coming and going, etc. Even moving from a big visually more stimulating room to a smaller one makes a difference (eg. my living room to my bedroom).
You might consider lying down for 10 -20 minutes every one and a half to 2 hrs through the day. Just regenerate for that little bit, every couple hours. Works with the ultradian cycle. Google it, you'll find a few interesting sites.
Also, if you can have a more or less regular lay-down time, maybe morning and afternoon and evening, if you need that many take that many. It will help you heal. I used to go to bed to sleep after being up for like 2 hrs in the morning; then by late afternoon another couple hours, sleep or read; and then I'd read from 8 p.m. till bedtime in my room. It helped. It's an investment. It's regenerating. It isn't being weak. It isn't giving up. It's reclaiming your life. It's protecting your life.
Through my naturopath, I've learned some things. Eg. I take omega 3 oil, liquid. It helps the joint and muscle pain. Also helps the brain, central nervous system, among other things.
Also, I take 7,000 IU's a day of Vitamin D3. I started lower, after reading about its benefits, and gradually increased. I ran out for a couple weeks and started crashing -- felt like I was in a heavier gravity, weighted down, gasping and panting, legs weighed a million pounds, could hardly hold up my head, and very foggy. All symptoms that had been gone for months, maybe a year. And now back! Scary.
Within 2 days of starting back on Vit. D, the symptoms began to ease and within a week or so, pretty much gone except for times of extra duress or tiredness.
For tired adrenals, I take ashwaghanda. Licorice tea is good for this too. Ginseng was too strong for me, made me feel like I was on speed (the CFS version anyway)and couldn't sleep at night. Google adrenal fatigue or adrenal insufficiency.
Whey protein isolate helped my distressed GI tract. Helped get regular, also selenium tablets work together with the whey protein. Other things, I take liquid chlorophyll, it helps clean toxins from the blood etc.
Apparently we just leak magnesium like crazy, so you could check that out. New data says if you're also taking calcium, take an equal amount of both, NOT twice as much calcium as magnesium.
My naturopath figured I needed some detoxification. Figured I probably had still undealt with infection, viruses, bacteria. Oil of Oregano in liquid or capsule are antibacterial, antiviral. Probiotics help balance bacteria in intestines.
This is getting way long so I should tie it up. Everyone with CFS has their own unique symptoms but some things are universal. Hopefully there might be something here of use to you.
Let me know one way or the other. 'Cause I've got more. :-)
Jody
April 27, 2009 - 3:39pmThis Comment
Reply