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Thank you to all you brave women posting comments on sarcoid. What a confusing and difficult disease to understand, even to the doctors. I was dx a year ago, then had a clear scan, but now another shows my sarcoid is back. Its in my eyes, sinuses and lungs. My lung doc and I decided no meds for now, I am post menopausal and that could present issues. I have good days, bad days..and all inbetween. It may also have gone neuro...am waiting to find out but honestly wont be surprised. The best thing going for me? A dear friend helps take care of me, the most understanding person I could have asked for. I was not sick before we lived together and it seems it doesnt make a difference, I could never do this by myself so you can imagine how lucky I feel. Family is not so understanding, as in many cases. I feel so fortunate to live where I do, have good doctors and someone who understands. It is a scary disease. It is far too easy to get carried away with so much negative so I try hard not to do that. One day at a time.